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告知坏消息:探究患者的观点和期望。

Breaking bad news: exploring patient's perspective and expectations.

作者信息

Ishaque Sidra, Saleem Taimur, Khawaja Fariha Batool, Qidwai Waris

机构信息

Medical College, The Aga Khan University Hospital, Karachi.

出版信息

J Pak Med Assoc. 2010 May;60(5):407-11.

Abstract

OBJECTIVE

To explore patient's perspectives and expectations from physicians with respect to breaking of bad news.

METHODS

A cross-sectional survey was carried out in the Community Health Centre of a tertiary care teaching hospital in Pakistan. All consenting individuals from 18 to 60 years of age were interviewed on the basis of a structured, pre-tested questionnaire.

RESULTS

The response rate for this study was 91.3%. A total of 400 respondents completed the full interview. About 60% patients had a fairly accurate idea about the implications of the phrase "bad news". A big proportion (44.1%) of people reported that bad news had been broken to them previously with incomplete details. From their personal experience, most respondents quoted "disease diagnosis" and "chances of survival" as most commonly encountered bad news. Diagnosis of cancer or its recurrence was stated as the most likely example of bad news (35.5%). A significant majority of respondents (40.5%) stated that it's the patient's absolute right to know bad news. A significant association for the relationship between both age as well as the gender of the respondents and type of emotional response expressed on hearing bad news (p = 0.000) was observed.

CONCLUSION

This study documents the perceptions and expectations of patients from their physicians with regards to breaking of bad news. Most of the respondents wanted their doctors to be honest and upfront during the process.

摘要

目的

探讨患者对于医生告知坏消息的观点和期望。

方法

在巴基斯坦一家三级护理教学医院的社区健康中心开展了一项横断面调查。所有年龄在18至60岁之间且同意参与的个体均依据一份经过预测试的结构化问卷接受访谈。

结果

本研究的回复率为91.3%。共有400名受访者完成了完整访谈。约60%的患者对“坏消息”这一表述的含义有较为准确的认识。很大一部分人(44.1%)表示之前被告知的坏消息细节不完整。根据个人经历,大多数受访者提到“疾病诊断”和“存活几率”是最常遇到的坏消息。癌症诊断或其复发被认为是坏消息最可能的例子(35.5%)。绝大多数受访者(40.5%)表示患者绝对有权知晓坏消息。观察到受访者的年龄和性别与听到坏消息时所表达的情绪反应类型之间存在显著关联(p = 0.000)。

结论

本研究记录了患者对于医生告知坏消息的认知和期望。大多数受访者希望医生在告知过程中诚实坦率。

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