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简短报告:英格兰和威尔士艾滋病毒感染者中与艾滋病毒相关的医疗保健耻辱感/歧视及未满足的需求。

Brief report: HIV-related healthcare stigma/discrimination and unmet needs among persons living with HIV in England and Wales.

作者信息

Wiginton John Mark, Maksut Jessica L, Murray Sarah M, Augustinavicius Jura L, Kall Meaghan, Delpech Valerie, Baral Stefan D

机构信息

Department of Health, Behavior, and Society, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.

Center for Public Health and Human Rights, Department of Epidemiology, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.

出版信息

Prev Med Rep. 2021 Oct 3;24:101580. doi: 10.1016/j.pmedr.2021.101580. eCollection 2021 Dec.

Abstract

We characterized the prevalence of, and estimated associations between, (1) HIV-related healthcare stigma/discrimination and (2) unmet social, mental, and chronic condition healthcare needs among persons living with HIV (PLHIV) in England and Wales. We used data from Positive Voices 2017, a national, cross-sectional probability survey of PLHIV in England and Wales, in which  = 3,475 PLHIV provided complete data on demographic characteristics (control variables; age, ethnicity, gender, sexual identity), HIV-related healthcare stigma/discrimination (exposures; treated differently from other patients, care was refused/delayed, worried about being treated differently, avoided seeking needed care, all due to HIV status), and unmet needs (outcomes; unmet peer support, psychological care, management of chronic health conditions, and isolation help needs). Modified Poisson regression models with log links and robust variance estimators were used to produce prevalence ratios and 95% confidence intervals for unadjusted and adjusted associations between demographic characteristics, HIV-related healthcare stigma/discrimination (individual items and total scale score), and unmet needs variables. Two in five participants (40%) endorsed at least one HIV-related healthcare stigma/discrimination item; and 474 (14%), 428 (12%), 459 (13%), and 501 (14%) reported an unmet peer support, psychological care, chronic health condition management, and isolation help need, respectively. Each HIV-related healthcare stigma/discrimination item and the summed scale score were significantly, positively associated with all four unmet needs variables in unadjusted and adjusted models. Trainings for all healthcare workers in HIV-competent, non-stigmatizing care, as well as the development of engagement and delivery approaches for psychosocial care for PLHIV, are needed.

摘要

我们对英格兰和威尔士的艾滋病毒感染者(PLHIV)中(1)与艾滋病毒相关的医疗保健耻辱感/歧视以及(2)未满足的社会、心理和慢性病医疗保健需求的患病率进行了描述,并估计了它们之间的关联。我们使用了2017年“积极之声”的数据,这是一项对英格兰和威尔士的PLHIV进行的全国性横断面概率调查,其中3475名PLHIV提供了关于人口统计学特征(控制变量;年龄、种族、性别、性取向)、与艾滋病毒相关的医疗保健耻辱感/歧视(暴露因素;因艾滋病毒感染状况而受到与其他患者不同的对待、护理被拒绝/延迟、担心受到不同对待、避免寻求所需护理)以及未满足的需求(结果;未得到满足的同伴支持、心理护理、慢性病管理以及隔离帮助需求)的完整数据。采用带有对数链接和稳健方差估计器的修正泊松回归模型,以得出人口统计学特征、与艾滋病毒相关的医疗保健耻辱感/歧视(单个项目和总量表得分)以及未满足需求变量之间未经调整和调整后的关联的患病率比值和95%置信区间。五分之二的参与者(40%)认可至少一项与艾滋病毒相关的医疗保健耻辱感/歧视项目;分别有474人(14%)、428人(12%)、459人(13%)和501人(14%)报告有未得到满足的同伴支持、心理护理、慢性病管理以及隔离帮助需求。在未经调整和调整后的模型中,每个与艾滋病毒相关的医疗保健耻辱感/歧视项目以及汇总量表得分均与所有四个未满足需求变量显著正相关。需要对所有医护人员进行具备艾滋病毒相关能力、无耻辱感护理方面的培训,以及为PLHIV制定社会心理护理的参与和提供方法。

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