Clinical Research Center for Precision and Regenerative Medicine, Kazan Federal University, Kremlevskaya St 18, Kazan, 420008, Tatarstan, Russia.
Department of Histology, Cytology and Embryology, Kazan State Medical University, Kazan, Russia.
BMC Med Educ. 2022 Jan 10;22(1):29. doi: 10.1186/s12909-021-03095-8.
Autism spectrum disorder (ASD) is a complex developmental range of conditions that involves difficulties with social interaction and restricted/repetitive behaviors. Unfortunately, health care providers often experience difficulties in diagnosis and management of individuals with ASD, and may have no knowledge about possible ways to overcome barriers in ASD patient interactions in healthcare settings. At the same time, the provision of appropriate medical services can have positive effects on habilitative progress, functional outcome, life expectancy and quality of life for individuals with ASD.
This online survey research study evaluated the awareness and experience of students/residents (n = 247) and physicians (n = 100) in the medical management of children with ASD. It also gathered the views and experiences of caregivers to children with ASD (n = 158), all based in Russia.
We have established that the Russian medical community has limited ASD knowledge among providers, and have suggested possible reasons for this. Based on results from online surveys completed by students/residents, non-psychiatric physicians, and caregivers of children diagnosed with ASD, the main problems pertaining to medical management of individuals with ASD were identified. Possible problem solving solutions within medical practice were proposed.
The results from this study should be considered when implementing measures to improve healthcare practices, and when developing models for effective medical management, due to start not only in Russia but also in a number of other countries.
自闭症谱系障碍(ASD)是一组复杂的发育障碍,涉及社交互动困难和受限/重复行为。不幸的是,医疗保健提供者在自闭症患者的诊断和管理方面经常遇到困难,并且可能对在医疗保健环境中克服自闭症患者互动障碍的可能方法一无所知。同时,提供适当的医疗服务可以对自闭症患者的康复进展、功能结果、预期寿命和生活质量产生积极影响。
这项在线调查研究评估了俄罗斯学生/住院医师(n=247)和医生(n=100)在儿童自闭症医疗管理方面的意识和经验。它还收集了自闭症儿童照顾者(n=158)的意见和经验。
我们已经确定,俄罗斯医疗界的提供者对自闭症的了解有限,并提出了造成这种情况的可能原因。根据学生/住院医师、非精神科医生和自闭症儿童照顾者在线调查完成的结果,确定了与自闭症患者医疗管理相关的主要问题。提出了在医疗实践中可能的解决问题的方法。
在实施改善医疗实践的措施以及制定有效的医疗管理模式时,应考虑本研究的结果,因为这些措施不仅将在俄罗斯实施,还将在其他一些国家实施。