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不止于记忆:对记忆咖啡馆照顾者报告的心理社会益处的定性分析

More than memory: A qualitative analysis of carer-reported psychosocial benefits of Memory Cafés.

作者信息

Protoolis Holly A, Burton Jason, Riley Layla, Jancey Jonine

机构信息

School of Population Health, Curtin University, Perth, Western Australia, Australia.

Alzheimer's Western Australia, Osbourne Park, Western Australia, Australia.

出版信息

Health Promot J Austr. 2022 Oct;33 Suppl 1(Suppl 1):358-366. doi: 10.1002/hpja.573. Epub 2022 Jan 22.

DOI:10.1002/hpja.573
PMID:35023232
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9788020/
Abstract

ISSUE ADDRESSED

Memory Cafés are a psychosocial intervention that aims to provide socialisation and interpersonal support for those living with dementia and their carers. This study explores the Memory Café model and determines the impact of the peer-to-peer Memory Café model on the psychosocial well-being of those living with dementia and their carers.

METHODS

Participants were informal carers of those living with dementia, recruited from four Memory Café's located in metropolitan Perth, Western Australia. Demographic information was collected from participants. Eleven semi-structured interviews were conducted. The data were transcribed and analysed thematically.

RESULTS

The benefits of participation are described under four themes; sharing experiences and reduction of stigma, a place to feel joy and be yourself, a time to socialise and build friendships and improvements in life outside the Memory Café. The positive attributes of the Memory Cafés that contributed to the benefits were also identified. Concerns about Memory Cafés were limited to it becoming a carers-only group.

CONCLUSIONS

Memory Cafés contribute significantly to the psychosocial well-being of carers of those living with dementia and provide a positive outlet for carers to build social networks and become active in their community. The effect on the psychosocial well-being of those living with dementia may be more limited but is still described positively. SO WHAT?: Dementia is a condition with significant impacts on carers and families. Successful peer-based social interventions such as Memory Cafés can lead to further development of dementia-friendly communities aimed at providing joy as well as support.

摘要

研究主题

记忆咖啡馆是一种社会心理干预措施,旨在为痴呆症患者及其护理人员提供社交机会和人际支持。本研究探讨记忆咖啡馆模式,并确定点对点记忆咖啡馆模式对痴呆症患者及其护理人员心理社会幸福感的影响。

方法

参与者为痴呆症患者的非正式护理人员,从西澳大利亚州珀斯市的四家记忆咖啡馆招募。收集了参与者的人口统计学信息。进行了11次半结构化访谈。对数据进行转录并进行主题分析。

结果

参与的益处归纳为四个主题;分享经历与减少耻辱感、感受快乐和做自己的场所、社交和建立友谊的时光以及记忆咖啡馆之外生活的改善。还确定了促成这些益处的记忆咖啡馆的积极属性。对记忆咖啡馆的担忧仅限于它变成一个仅由护理人员组成的群体。

结论

记忆咖啡馆对痴呆症患者护理人员的心理社会幸福感有显著贡献,并为护理人员提供了一个积极的途径来建立社交网络并积极参与社区活动。对痴呆症患者心理社会幸福感的影响可能较为有限,但仍被积极描述。那又如何?:痴呆症对护理人员和家庭有重大影响。成功的基于同伴的社会干预措施,如记忆咖啡馆,可促进旨在提供快乐和支持的痴呆症友好型社区的进一步发展。

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2
Preferences for models of peer support in the digital era: A cross-sectional survey of people with cancer.人们对数字时代同伴支持模式的偏好:一项针对癌症患者的横断面调查。
Psychooncology. 2018 Sep;27(9):2148-2154. doi: 10.1002/pon.4781. Epub 2018 Jun 29.
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Effectiveness of psychosocial interventions on the psychological health and emotional well-being of family carers of people with dementia following residential care placement: a systematic review.社会心理干预对痴呆症患者入住机构照料后家庭照料者心理健康和情绪幸福感的有效性:一项系统综述
JBI Database System Rev Implement Rep. 2018 May;16(5):1240-1268. doi: 10.11124/JBISRIR-2017-003634.
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Meeting the Informational, Educational, and Psychosocial Support Needs of Persons Living With Dementia and Their Family Caregivers.满足患有痴呆症的患者及其家庭照顾者的信息、教育和心理社会支持需求。
Gerontologist. 2018 Jan 18;58(suppl_1):S58-S73. doi: 10.1093/geront/gnx162.
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Meeting psychosocial needs for persons with dementia in home care services - a qualitative study of different perceptions and practices among health care providers.满足居家护理服务中痴呆症患者的心理社会需求——对医疗保健提供者不同认知与实践的定性研究
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