以患者为中心的目标设定在有主观认知下降的帕金森病患者中是可行的：一项混合方法研究。
Person-centered goal setting is feasible in people with Parkinson's disease who have subjective cognitive decline: a mixed methods study.
机构信息
Program in Occupational Therapy, Washington University School of Medicine, St. Louis, MO, USA.
Program in Occupational Therapy, Louisiana State University of Health Sciences, Shreveport, LA, USA.
出版信息
Disabil Rehabil. 2023 Jan;45(1):90-97. doi: 10.1080/09638288.2022.2025930. Epub 2022 Jan 13.
PURPOSE
Evaluate the feasibility of person-centered goal setting in people with Parkinson's disease (PD) who have subjective cognitive decline and explore characteristics of the formulated goals.
MATERIALS AND METHODS
Participants completed person-centered goal setting as a part of two cognitive intervention studies. Participants were guided to develop at least three goals and rate the importance of each goal using a 10-point scale (1: not at all important - 10: extremely important). To evaluate the feasibility of person-centered goal setting, we calculated the mean number of formulated goals per person and the importance level of all goals. To explore goal characteristics, two independent authors coded all goals and synthesized them using deductive content analysis in consultation with the senior author.
RESULTS
Thirty participants formulated a total of 166 goals. The mean number of formulated goals per participant was 5.53 (SD = 2.22, range = 3 - 10). The mean importance level of all formulated goals was 8.3 (SD = 1.49, range = 4 - 10). Formulated goals ranged across diverse domains and categories.
CONCLUSIONS
Person-centered goal setting is feasible to guide people with PD to formulate personally meaningful goals. Findings highlight the diverse cognitive rehabilitation needs of people with PD, potential cognitive rehabilitation priorities, and future goal setting research directions.Implications for rehabilitationRehabilitation clinicians and researchers should not assume that people with PD who have subjective cognitive decline are not capable of engaging in their goal setting.Rehabilitation clinicians and researchers should acknowledge and act on our responsibility to enable people with PD who have subjective cognitive decline to engage in goal setting.Rehabilitation clinicians and researchers are encouraged to explore diverse goal domains to optimize goal setting and rehabilitation care among people with PD who have subjective cognitive decline.
目的
评估有主观认知下降的帕金森病（PD）患者实施以患者为中心的目标设定的可行性，并探讨所制定目标的特征。
材料和方法
参与者作为两项认知干预研究的一部分完成了以患者为中心的目标设定。参与者被引导制定至少三个目标，并使用 10 分制（1：一点也不重要-10：非常重要）对每个目标的重要性进行评分。为了评估以患者为中心的目标设定的可行性，我们计算了每个人制定的目标的平均数和所有目标的重要性水平。为了探索目标特征，两位独立的作者对所有目标进行编码，并与资深作者协商使用演绎内容分析对其进行综合。
结果
30 名参与者共制定了 166 个目标。每位参与者制定的目标平均数为 5.53（SD=2.22，范围=3-10）。所有制定目标的平均重要性水平为 8.3（SD=1.49，范围=4-10）。制定的目标涵盖了各种不同的领域和类别。
结论
以患者为中心的目标设定可行，可以指导 PD 患者制定有个人意义的目标。研究结果突出了 PD 患者多样化的认知康复需求、潜在的认知康复重点以及未来的目标设定研究方向。
对康复的影响
康复临床医生和研究人员不应假设有主观认知下降的 PD 患者没有能力参与他们的目标设定。康复临床医生和研究人员应承认并履行我们的责任，使有主观认知下降的 PD 患者能够参与目标设定。鼓励康复临床医生和研究人员探索不同的目标领域，以优化有主观认知下降的 PD 患者的目标设定和康复护理。
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