Bae Su Hyun, Kim Yeo Hyang
Pediatric Palliative Care Center, Kyungpook National University Children's Hospital, Daegu 41404, Korea.
Department of Social Welfare, Kyungpook National University, Daegu 41566, Korea.
Healthcare (Basel). 2022 Jan 9;10(1):127. doi: 10.3390/healthcare10010127.
Few Korean hospitals had experience in pediatric palliative care. Since the beginning of the national palliative care project, interest in pediatric palliative care has gradually increased, but the establishment of professional palliative care is still inadequate due to a lack of indicators. This study aimed to find considerations in the process of initiating palliative care services. The general and clinical characteristics of 181 patients aged less than 24 years who were registered at the pediatric palliative care center from January 2019 to August 2021 were evaluated. Life-limiting condition group 1 had the largest number of patients. The primary need for palliative care was psychological and emotional support, followed by information sharing and help in communication with the medical staff in decision-making processes. Seventy-two patients were technologically dependent, with one to four technical supports for each patient. The registration of patients with cancer increased with time, and the time from disease diagnosis to consultation for pediatric palliative care service was significantly reduced. In conclusion, before starting pediatric palliative care, it is necessary to understand the needs of patients and their families and to cooperate with medical staff.
很少有韩国医院有小儿姑息治疗的经验。自国家姑息治疗项目启动以来，对小儿姑息治疗的关注度逐渐提高，但由于缺乏指标，专业姑息治疗的建立仍不充分。本研究旨在找出启动姑息治疗服务过程中的注意事项。对2019年1月至2021年8月在小儿姑息治疗中心登记的181名24岁以下患者的一般和临床特征进行了评估。生命有限疾病组1的患者数量最多。姑息治疗的主要需求是心理和情感支持，其次是信息共享以及在决策过程中帮助与医务人员沟通。72名患者存在技术依赖，每名患者有一到四项技术支持。癌症患者的登记人数随时间增加，从疾病诊断到小儿姑息治疗服务咨询的时间显著缩短。总之，在开始小儿姑息治疗之前，有必要了解患者及其家属的需求，并与医务人员合作。
