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在格勒诺布尔患者学校成功培训患者参与健康教育和临床研究。

Successful Training of Patients to Intervene in Health Education and Clinical Research at Grenoble Patient School.

作者信息

Merle Raymond, Pépin Jean-Louis, Palombi Olivier, Pariset Albane, Allenet Benoît, Pison Christophe

机构信息

Université Grenoble Alpes, Saint Martin d'Hères, Rhône-Alpes, France.

Laboratoire de Bioénergétique Fondamentale et Appliquée, Inserm1055, Saint Martin d'Hères, France.

出版信息

J Patient Exp. 2022 Jan 24;9:23743735211069810. doi: 10.1177/23743735211069810. eCollection 2022.

Abstract

The primary goal of patient and public involvement (PPI) in healthcare is to improve individual and population health outcomes. This study reports on the successful training of patients to be involved in patient education as peers and clinical research at Grenoble Patients' School (GPS). GPS was founded by patients as an independent association to train patients to the above objectives tasks. The training team was multi-professional and included expert PPI who were part of the professional team. Medical faculty members and 45 patients, 59% females, 52 ± 6.4 years old, trained between 2016 and 2017, showed high satisfaction at the end of the training courses. Almost all the trained patients were involved as peer educators and 4 were involved in clinical research projects at different stages under the guidance of medical teams. Patient involvement at GPS provided strong benefits to trainees and had some impact on education and obtaining research grants. The outcome of this patient training program resulted in the creation of a Patients' Department within the Medical and Pharmacy Schools at the Université Grenoble Alpes in 2020, https://medecine.univ-grenoble-alpes.fr/departements/departement-universitaire-des-patients/.

摘要

患者及公众参与医疗保健的主要目标是改善个人和群体的健康状况。本研究报告了在格勒诺布尔患者学校(GPS)成功培训患者作为同伴参与患者教育和临床研究的情况。GPS由患者创立,是一个独立协会,旨在培训患者完成上述目标任务。培训团队是多专业的,包括作为专业团队一部分的患者及公众参与专家。2016年至2017年期间,医学教员和45名患者(59%为女性,年龄52±6.4岁)接受了培训,在培训课程结束时表现出高度满意度。几乎所有接受培训的患者都作为同伴教育者参与其中,4人在医疗团队的指导下参与了不同阶段的临床研究项目。GPS的患者参与为学员带来了巨大益处,并对教育和获得研究资助产生了一定影响。该患者培训项目的成果导致2020年在格勒诺布尔阿尔卑斯大学医学院和药学院内设立了患者部(https://medecine.univ-grenoble-alpes.fr/departements/departement-universitaire-des-patients/)。

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