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本文引用的文献

1
Neighbourhoods as relational places for people living with dementia.邻里关系对痴呆症患者的重要性。
Soc Sci Med. 2020 May;252:112927. doi: 10.1016/j.socscimed.2020.112927. Epub 2020 Mar 17.
2
The significance of overlooked objects: Materiality and care at home for people with dementia.被忽视的物品的意义:痴呆症患者家中的物质性和关怀。
Nurs Inq. 2020 Jan;27(1):e12306. doi: 10.1111/nin.12306. Epub 2019 Aug 13.
3
Stigma, discrimination and agency: Diagnostic disclosure as an everyday practice shaping social citizenship.污名、歧视与能动性:作为塑造社会公民身份日常实践的诊断披露
J Aging Stud. 2018 Mar;44:45-51. doi: 10.1016/j.jaging.2018.01.010. Epub 2018 Feb 9.
4
Conceptualising 'materialities of care': making visible mundane material culture in health and social care contexts.构建“护理的物质性”:使健康与社会护理背景下平凡的物质文化可见。
Sociol Health Illn. 2018 Feb;40(2):243-255. doi: 10.1111/1467-9566.12663.
5
Materialities of mundane care and the art of holding one's own.日常护理的物质性与坚持自我的艺术。
Sociol Health Illn. 2018 Feb;40(2):256-269. doi: 10.1111/1467-9566.12574.
6
Dressing disrupted: negotiating care through the materiality of dress in the context of dementia.着装被打乱:在痴呆症背景下通过着装的物质性协商护理
Sociol Health Illn. 2018 Feb;40(2):340-352. doi: 10.1111/1467-9566.12575.
7
Afterword: materialities, care, 'ordinary affects', power and politics.后记:物质性、关怀、“日常情感”、权力与政治
Sociol Health Illn. 2018 Feb;40(2):379-391. doi: 10.1111/1467-9566.12678.
8
The lived neighborhood: understanding how people with dementia engage with their local environment.居住的社区:了解痴呆症患者如何与当地环境互动。
Int Psychogeriatr. 2018 Jun;30(6):867-880. doi: 10.1017/S1041610217000631. Epub 2017 May 2.
9
Women with dementia and their handbags: negotiating identity, privacy and 'home' through material culture.患有痴呆症的女性及其手提包:通过物质文化协商身份、隐私和“家”的意义。
J Aging Stud. 2014 Aug;30:14-22. doi: 10.1016/j.jaging.2014.03.002. Epub 2014 Apr 1.
10
The 'D' word: Reflections on the relationship between stigma, discrimination and dementia.“痴呆”一词:关于污名、歧视与痴呆症之间关系的思考
J Ment Health. 2010 Jun;19(3):227-33. doi: 10.3109/09638231003728166.

友善对待痴呆症患者的日常生活:在公共场所中寻找照护。

Living the everyday of dementia friendliness: Navigating care in public spaces.

机构信息

Population Health Sciences Institute, Newcastle University, Newcastle, UK.

School of Geography, Politics and Sociology, Newcastle University, Newcastle, UK.

出版信息

Sociol Health Illn. 2022 Feb;44(2):416-431. doi: 10.1111/1467-9566.13442. Epub 2022 Feb 6.

DOI:10.1111/1467-9566.13442
PMID:35128684
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9306568/
Abstract

Dementia friendly communities are a priority for international policymaking aimed at tackling the social exclusion of people living with dementia. However, what constitutes a dementia friendly community is not well defined nor understood. In this article, we explore what constitutes the enactment of care in a dementia friendly community, focusing on commercial, leisure public places. Through qualitative interviews with carers in the North East of England, we examine how elements of social and material environments shape meaningful everyday practices of care outside the home. Drawing from the literature on materialities of care, we examine three everyday activities: eating out, going to the cinema and shopping. Maintaining such activities in public is part of keeping on with normal family life, but they can also expose individuals to stigmatising judgements by outsiders. Despite this, a complex array of material things, people, places and immaterial qualities such as ambience can come together to make care possible. We suggest there is a need to promote a less rigid, more flexible ethos in these public places. Through a recognition of the relational materialities of care, public spaces could do more to become places where people living with dementia can continue to feel connected and included.

摘要

痴呆症友好社区是国际政策制定的重点,旨在解决痴呆症患者的社会排斥问题。然而,什么是痴呆症友好社区并没有得到很好的定义和理解。在本文中,我们探讨了在痴呆症友好社区中实施护理的构成要素,重点关注商业、休闲公共场所。通过对英格兰东北部护理人员的定性访谈,我们研究了社会和物质环境的要素如何塑造家庭以外有意义的日常护理实践。借鉴护理物质性的文献,我们考察了三种日常活动:外出就餐、看电影和购物。在公共场所维持这些活动是保持正常家庭生活的一部分,但它们也可能使个人容易受到局外人的污名化判断。尽管如此,一系列复杂的物质事物、人员、地点和氛围等非物质质量可以共同促成护理的实现。我们认为,有必要在这些公共场所倡导一种不那么僵化、更灵活的风气。通过认识到护理的关系物质性,公共场所可以做更多的工作,使患有痴呆症的人能够继续感到联系和包容。