Stuhlmann Caroline F Z, Traxler Juliane, Paucke Valentina, da Silva Burger Neuza, Sommer Rachel
German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany.
J Eur Acad Dermatol Venereol. 2025 Mar;39(3):622-630. doi: 10.1111/jdv.20314. Epub 2024 Sep 9.
People with skin disease suffer due to disease-related physical symptoms, as well as due to significant psychosocial burden. A major contributor of this burden is the experience of stigmatization. Research indicates that people with visible skin diseases deal with both social stigma and self-stigma.
This systematic literature review aimed to aggregate existing research on correlates and mechanisms that contribute to self-stigmatization among people with atopic dermatitis, psoriasis, vitiligo, alopecia areata or hidradenitis suppurativa and to, ultimately, identify targets for psychosocial interventions.
The review followed PRISMA guidelines. Four databases, PubMed, OVID, Web of Science and PsycINFO were searched for peer-reviewed articles. Studies were identified by two independent researchers and were eligible if they (1) assessed adults with one of five chronic skin diseases-atopic dermatitis, psoriasis, vitiligo, alopecia areata or hidradenitis suppurativa, (2) measured self-stigma or relevant synonyms, (3) evaluated psychosocial correlates, predictors or explanatory mechanisms of self-stigma and (4) were published in German or English in a peer-reviewed journal. The Johanna Briggs Institute Checklist for Analytical Cross Sectional Studies was used to evaluate the quality of studies.
Twenty-seven studies were included with a mean quality rating of 7.04 (out of 8). Social stigma, coping strategies (such as lack of acceptance) and lack of social support were identified as main predictors of self-stigma. Although study quality was good, all but one study had a cross-sectional design that does not allow examining causal relationships among the determinants of self-stigma.
Findings from the present review revealed several psychosocial variables that are malleable and potentially suitable as intervention targets. Those variables such as acceptance should be targeted in evidence-based interventions specifically developed to reduce self-stigma to, ultimately, improve mental health of people affected.
皮肤病患者不仅遭受与疾病相关的身体症状折磨,还承受着巨大的心理社会负担。这种负担的一个主要因素是被污名化的经历。研究表明,患有可见性皮肤病的人既要应对社会污名,也要面对自我污名。
本系统文献综述旨在汇总现有关于特应性皮炎、银屑病、白癜风、斑秃或化脓性汗腺炎患者自我污名化的相关因素及机制的研究,并最终确定心理社会干预的目标。
该综述遵循PRISMA指南。在四个数据库(PubMed、OVID、科学网和PsycINFO)中检索同行评审文章。由两名独立研究人员筛选研究,符合以下条件的研究纳入:(1)评估患有五种慢性皮肤病(特应性皮炎、银屑病、白癜风、斑秃或化脓性汗腺炎)之一的成年人;(2)测量自我污名或相关同义词;(3)评估自我污名的心理社会相关因素、预测因素或解释机制;(4)在同行评审期刊上以德语或英语发表。使用约翰娜·布里格斯研究所分析性横断面研究清单评估研究质量。
纳入27项研究,平均质量评分为7.04(满分8分)。社会污名、应对策略(如缺乏接纳)和缺乏社会支持被确定为自我污名的主要预测因素。尽管研究质量良好,但除一项研究外,所有研究均采用横断面设计,无法检验自我污名决定因素之间的因果关系。
本综述结果揭示了几个具有可塑性且可能适合作为干预目标的心理社会变量。在专门为减少自我污名而制定的循证干预中,应针对诸如接纳等变量,最终改善受影响人群的心理健康。