Department of Respiratory and Sleep Medicine, Royal North Shore Hospital, St Leonards, Australia.
Faculty of Medicine and Health, The University of Sydney, Sydney, Australia.
Sleep Breath. 2022 Dec;26(4):1931-1937. doi: 10.1007/s11325-022-02573-7. Epub 2022 Feb 9.
Obstructive sleep apnoea (OSA) is a common condition with a range of short- and long-term health implications. Providing patient-centred care is a key principle to ensure patients are well informed and empowered to participate in clinical decision making. This study aimed to develop a patient-centred sleep study report for patients with obstructive sleep apnoea and to determine whether or not its implementation led to improved patient understanding of their disease.
The study was performed in two phases. The first phase utilised the Delphi-survey technique to develop and critically appraise a patient-centred sleep study report (PCSR) for patients with OSA, to accurately and simply convey key components of the patient's diagnosis and management. The second phase was a prospective, randomised controlled trial to assess the effect of the PCSR on patient knowledge, self-efficacy, and understanding as measured through validated patient questionnaires.
The PCSR was developed on key concepts deemed to be important by the surveyed physicians, senior sleep scientists and patients. This included ensuring the results were customised, highlighting the patient's apnoea-hypopnea index, oxygen desaturation index and arousal index and limiting technical information to a few key pieces. Patients randomised to receive the PCSR had improved understanding and perceived patient-physician interaction compared to those randomised to standard care.
The development and implementation of the PCSR was feasible and improved patient understanding and perceived patient-physician interaction in patients with moderate to severe OSA. Whether or not use of the PCSR will translate to improved compliance with therapy will require further evaluation.
阻塞性睡眠呼吸暂停（OSA）是一种常见病症，具有多种短期和长期的健康影响。提供以患者为中心的护理是确保患者充分知情并能够参与临床决策的关键原则。本研究旨在为阻塞性睡眠呼吸暂停患者开发一份以患者为中心的睡眠研究报告，并确定其实施是否能提高患者对疾病的理解。
该研究分两个阶段进行。第一阶段利用德尔菲调查技术开发和批判性评估了一份用于阻塞性睡眠呼吸暂停患者的以患者为中心的睡眠研究报告（PCSR），以准确、简洁地传达患者诊断和管理的关键内容。第二阶段是一项前瞻性、随机对照试验，以评估 PCSR 对患者知识、自我效能和理解的影响，这些通过经过验证的患者问卷进行衡量。
PCSR 是基于调查医生、高级睡眠科学家和患者认为重要的关键概念开发的。这包括确保结果个性化，突出患者的呼吸暂停-低通气指数、氧减饱和指数和觉醒指数，并将技术信息限制在几条关键内容上。与接受标准护理的患者相比，随机接受 PCSR 的患者在理解和感知医患互动方面有所改善。
PCSR 的开发和实施是可行的，它可以提高中重度阻塞性睡眠呼吸暂停患者的理解和感知医患互动。PCSR 的使用是否会提高治疗的依从性，还需要进一步评估。
