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“良好的”社区和公众参与是什么样的?在全球健康研究中与社区成员建立关系。

What Does "Good" Community and Public Engagement Look Like? Developing Relationships With Community Members in Global Health Research.

机构信息

Wessex Institute, Faculty of Medicine, University of Southampton, Southampton, United Kingdom.

School of Health Sciences, University of Brighton, Brighton, United Kingdom.

出版信息

Front Public Health. 2022 Jan 27;9:776940. doi: 10.3389/fpubh.2021.776940. eCollection 2021.

Abstract

Community and public engagement (CPE) is increasingly becoming a key component in global health research. The National Institute for Health Research (NIHR) is one of the leading funders in the UK of global health research and requires a robust CPE element in the research it funds, along with CPE monitoring and evaluation. But what does "good" CPE look like? And what factors facilitate or inhibit good CPE? Addressing these questions would help ensure clarity of expectations of award holders, and inform effective monitoring frameworks and the development of guidance. The work reported upon here builds on existing guidance and is a first step in trying to identify the key components of what "good" CPE looks like, which can be used for all approaches to global health research and in a range of different settings and contexts. This article draws on data collected as part of an evaluation of CPE by 53 NIHR-funded award holders to provide insights on CPE practice in global health research. This data was then debated, developed and refined by a group of researchers, CPE specialists and public contributors to explore what "good" CPE looks like, and the barriers and facilitators to good CPE. A key finding was the importance, for some research, of investing in and developing long term relationships with communities, perhaps beyond the life cycle of a project; this was regarded as crucial to the development of trust, addressing power differentials and ensuring the legacy of the research was of benefit to the community.

摘要

社区和公众参与(CPE)越来越成为全球健康研究的一个关键组成部分。英国国家卫生研究院(NIHR)是英国全球健康研究的主要资助者之一,要求其资助的研究具有强大的 CPE 要素,同时进行 CPE 监测和评估。但是,什么样的 CPE 才算“好”呢?哪些因素促进或阻碍了良好的 CPE?回答这些问题将有助于确保明确奖项获得者的期望,并为有效的监测框架和指导方针的制定提供信息。这里报告的工作是在现有指导方针的基础上进行的,是试图确定“良好”CPE 所具有的关键要素的第一步,这些要素可用于所有全球健康研究方法,并适用于各种不同的环境和背景。本文借鉴了对 53 名 NIHR 资助的奖项获得者进行 CPE 评估所收集的数据,以了解全球健康研究中 CPE 实践的情况。然后,一组研究人员、CPE 专家和公众参与者对这些数据进行了辩论、开发和完善,以探讨什么样的 CPE 才算“好”,以及促进和阻碍良好 CPE 的因素。一个重要发现是,对于某些研究而言,投资并与社区建立长期关系非常重要,这种关系可能会超越项目的生命周期;这被认为是建立信任、解决权力差异以及确保研究成果为社区带来利益的关键。

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