Black Gillian F, Davies Alun, Iskander Dalia, Chambers Mary
Sustainable Livelihoods Foundation (SLF), Wynberg Cape Town, South Africa.
Kenya Medical Research Institute - Wellcome Trust Research Programme, Kilifi, Kilifi County, Kenya.
Glob Bioeth. 2017 Dec 20;29(1):22-38. doi: 10.1080/11287462.2017.1415722. eCollection 2018.
There is a growing body of literature describing conceptual frameworks for working with participatory visual methods (PVM). Through a global health lens, this paper examines some key themes within these frameworks. We reflect on our experiences of working with with an array of PVM to engage community members in Vietnam, Kenya, the Philippines and South Africa in biomedical research and public health. The participants that we have engaged in these processes live in under-resourced areas with high prevalence of communicable and non-communicable diseases. Our paper describes some of the challenges that we have encountered while using PVM to foster knowledge exchange, build relationships and facilitate change among individuals and families, community members, health workers, biomedical scientists and researchers. We consider multiple ethical situations that have arisen through our work and discuss the ways in which we have navigated and negotiated them. We offer our reflections and learning from facilitating these processes and in doing so we add novel contributions to ethical framework concepts.
有越来越多的文献描述了使用参与性视觉方法（PVM）的概念框架。本文从全球健康的角度审视了这些框架中的一些关键主题。我们反思了在越南、肯尼亚、菲律宾和南非与一系列参与性视觉方法合作，让社区成员参与生物医学研究和公共卫生的经历。我们在这些过程中接触的参与者生活在资源匮乏、传染病和非传染病高发的地区。我们的论文描述了在使用参与性视觉方法促进知识交流、建立关系以及推动个人、家庭、社区成员、卫生工作者、生物医学科学家和研究人员之间的变革时遇到的一些挑战。我们考虑了工作中出现的多种伦理情况，并讨论了应对和协商这些情况的方式。我们分享了在推动这些过程中的思考和经验教训，在此过程中，我们为伦理框架概念做出了新的贡献。
