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YouTube作为甲状腺功能减退症的患者信息来源。

YouTube as a patient-information source for hypothyroidism.

作者信息

Dułak Natalia A, Anuszkiewicz Karolina, Trzciński Rafał, Fanciulli Giuseppe, Stogowski Piotr

机构信息

Saint Vincent de Paul Hospital, Gdynia, Poland -

University Clinical Center in Gdansk, Gdansk, Poland.

出版信息

Minerva Endocrinol (Torino). 2023 Dec;48(4):371-378. doi: 10.23736/S2724-6507.22.03732-0. Epub 2022 Feb 15.

Abstract

BACKGROUND

Hypothyroidism is a very common disease that requires life-long treatment. In our study, we analyze the quality of the YouTube videos concerning hypothyroidism as a "source of health information" for the patients, and the (possible) correlation between video quality and video popularity.

METHODS

We included 96 YouTube videos obtained by using the following search terms: "hypothyroidism," "Hashimoto's disease," "thyroid insufficiency," and "low thyroid hormone." We evaluated video quality by using the DISCERN criteria, and video popularity by using the Video Power Index.

RESULTS

The mean DISCERN Score for both raters was 1.995, indicating poor YouTube videos' quality. Sixty-eight videos achieved a high score in the video power index (VPI). The mean popularity score for videos with misleading information was higher than the mean score for all evaluated videos.

CONCLUSIONS

The overall quality of YouTube videos regarding hypothyroidism was poor. Videos frequently lack the source of information presented. Besides, content is often incomplete, and sometimes includes misleading statements. Physicians dealing with hypothyroid patients should be aware of the possibility that information and instruction they give to patients could be "modulated" by the availability of both low quality and popular alternative "sources of medical knowledge."

摘要

背景

甲状腺功能减退症是一种非常常见的疾病,需要终身治疗。在我们的研究中,我们分析了YouTube上有关甲状腺功能减退症的视频质量,这些视频作为患者的“健康信息来源”,以及视频质量与视频受欢迎程度之间的(可能的)相关性。

方法

我们纳入了通过使用以下搜索词获得的96个YouTube视频:“甲状腺功能减退症”、“桥本氏病”、“甲状腺功能不全”和“甲状腺激素水平低”。我们使用DISCERN标准评估视频质量,并使用视频影响力指数评估视频受欢迎程度。

结果

两位评分者的平均DISCERN评分为1.995,表明YouTube视频质量较差。68个视频在视频影响力指数(VPI)中获得高分。有误导性信息的视频的平均受欢迎程度得分高于所有评估视频的平均得分。

结论

YouTube上有关甲状腺功能减退症的视频总体质量较差。视频经常缺乏所呈现信息的来源。此外,内容往往不完整,有时还包含误导性陈述。治疗甲状腺功能减退症患者的医生应意识到,他们提供给患者的信息和指导可能会受到低质量且受欢迎的替代“医学知识来源”的影响。

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