Department of Ophthalmology, Kocaeli Derince Education and Research Hospital, Kocaeli, Turkey.
Department of Ophthalmology, Ersin Arslan Education and Research Hospital, Gaziantep, Turkey.
Clin Exp Optom. 2023 Jan;106(1):10-14. doi: 10.1080/08164622.2021.2012429. Epub 2021 Dec 8.
Keratoconus (KC) treatment in the early stage is usually with glasses or soft toric contact lenses, in advanced stages rigid gas-permeable corneal or scleral contact lenses are used. Optometrists should be aware of misleading information from online platforms when providing information to keratoconus patients.
Keratoconus is a progressive corneal disease characterised by stromal thinning and corneal ectasia. To the best of our knowledge, there is no study evaluating the popularity, quality, and reliability of videos about keratoconus disease and its treatment published on YouTube. In our study, we aimed to evaluate the credibility, quality, and popularity of YouTube videos about keratoconus.
This is a retrospective, cross-sectional, register-based study. A YouTube search was performed using the keywords 'keratoconus', 'keratoconus disease', 'keratoconus treatment', 'keratoconus cross linking'. The quality and reliability of video content were measured using the DISCERN questionnaire, the Journal of the American Medical Association (JAMA) score, and the Global Quality Score (GQS). The video power index was used to evaluate the popularity of the videos.
One hundred videos were included in the study. The average duration was 6.33 min and average total number of views was 14,940. The mean DISCERN, JAMA, and GQS scores were 42.57 ± 12.04 (intermediate quality), 1.77 ± 0.51 (poor quality), and 3.63 ± 1.03 (intermediate quality), respectively. The mean video power index was 11.02 ± 24.55 (range, 0-193). The DISCERN score was significantly positively correlated with GQS and JAMA scores (p ≤ 0.001).
This study showed that YouTube videos about keratoconus contain moderately useful information for patients. So, physicians, being aware of the quality and diversity of online information, should correct any misinformation they encounter while face-to-face with patients.
圆锥角膜（KC）的早期治疗通常采用眼镜或软性散光隐形眼镜，晚期则采用硬性透气性角膜或巩膜接触镜。视光师在向圆锥角膜患者提供信息时，应注意来自在线平台的误导性信息。
圆锥角膜是一种进行性的角膜疾病，其特征是基质变薄和角膜扩张。据我们所知，目前尚无研究评估关于圆锥角膜疾病及其治疗的 YouTube 视频的受欢迎程度、质量和可靠性。在我们的研究中，我们旨在评估关于圆锥角膜的 YouTube 视频的可信度、质量和受欢迎程度。
这是一项回顾性、横断面、基于登记的研究。使用关键词“圆锥角膜”、“圆锥角膜病”、“圆锥角膜治疗”、“圆锥角膜交联”在 YouTube 上进行搜索。使用 DISCERN 问卷、《美国医学会杂志》（JAMA）评分和全球质量评分（GQS）来测量视频内容的质量和可靠性。视频功率指数用于评估视频的受欢迎程度。
本研究共纳入 100 个视频。平均时长为 6.33 分钟，总观看次数平均为 14940 次。平均 DISCERN、JAMA 和 GQS 评分为 42.57±12.04（中等质量）、1.77±0.51（低质量）和 3.63±1.03（中等质量）。平均视频功率指数为 11.02±24.55（范围 0-193）。DISCERN 评分与 GQS 和 JAMA 评分呈显著正相关（p≤0.001）。
本研究表明，关于圆锥角膜的 YouTube 视频为患者提供了中等有用的信息。因此，医生在与患者面对面交流时，应该意识到在线信息的质量和多样性，并纠正他们遇到的任何错误信息。
