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Feasibility, usability, and acceptability of personalized web-based assessment of social network and daily social support interactions over time.随着时间的推移,基于个性化网络的社会网络和日常社会支持互动的评估的可行性、可用性和可接受性。
J Cancer Surviv. 2022 Aug;16(4):904-912. doi: 10.1007/s11764-021-01083-x. Epub 2022 Jan 22.
2
Health outcomes of sexual and gender minorities after cancer: a systematic review.癌症后性少数群体和性别少数群体的健康结局:一项系统综述。
Syst Rev. 2021 Jun 21;10(1):183. doi: 10.1186/s13643-021-01707-4.
3
Psychosocial Effects of the COVID-19 Pandemic and Mental Health among LGBTQ+ Young Adults: A Cross-Cultural Comparison across Six Nations.COVID-19 大流行对 LGBTQ+ 青年的心理社会影响和精神健康:六个国家的跨文化比较。
J Homosex. 2021 Mar 21;68(4):612-630. doi: 10.1080/00918369.2020.1868186. Epub 2021 Jan 22.
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Oncologists' experiences caring for LGBTQ patients with cancer: Qualitative analysis of items on a national survey.肿瘤学家照顾癌症 LGBTQ 患者的经验:全国调查项目条目的定性分析。
Patient Educ Couns. 2021 Apr;104(4):871-876. doi: 10.1016/j.pec.2020.09.022. Epub 2020 Sep 22.
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The support that partners or caregivers provide sexual minority women who have cancer: A systematic review.癌症患者中性少数女性的伴侣或照顾者所提供的支持:系统评价。
Soc Sci Med. 2020 Sep;261:113214. doi: 10.1016/j.socscimed.2020.113214. Epub 2020 Jul 18.
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The Role of Social Support in Adolescent/Young Adults Coping with Cancer Treatment.社会支持在青少年/青年成人应对癌症治疗中的作用。
Children (Basel). 2019 Dec 23;7(1):2. doi: 10.3390/children7010002.
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Being a teenager and cancer patient: What do adolescents and young adults with cancer find valuable and challenging with their friends and cancer peers?青少年与癌症患者:青少年及青年癌症患者在与朋友及癌症病友相处时,觉得哪些事有价值,又面临哪些挑战?
J Psychosoc Oncol. 2020 Mar-Apr;38(2):195-209. doi: 10.1080/07347332.2019.1672847. Epub 2019 Oct 14.
8
The changing nature of social support for adolescents and young adults with cancer.青少年和青年癌症患者社会支持的变化性质。
Eur J Oncol Nurs. 2019 Dec;43:101667. doi: 10.1016/j.ejon.2019.09.008. Epub 2019 Sep 19.
9
Overlooked Minorities: The Intersection of Cancer in Lesbian, Gay, Bisexual, Transgender, and/or Intersex Adolescents and Young Adults.被忽视的少数群体:女同性恋、男同性恋、双性恋、跨性别和/或双性人青少年及年轻人中的癌症交叉问题
J Adolesc Young Adult Oncol. 2019 Oct;8(5):525-528. doi: 10.1089/jayao.2019.0021. Epub 2019 Jun 14.
10
Psychosocial issues for adolescent and young adult cancer patients in a global context: A forward-looking approach.全球视角下青少年和青年癌症患者的心理社会问题:前瞻性方法。
Pediatr Blood Cancer. 2019 Aug;66(8):e27789. doi: 10.1002/pbc.27789. Epub 2019 May 6.

“情况有点复杂”:对年轻成年及年轻成年女同性恋、男同性恋、双性恋、跨性别者和/或酷儿癌症幸存者所感知到的社会支持的定性探索

"It's Kind of Complicated": A Qualitative Exploration of Perceived Social Support in Young Adult and Young Adult Lesbian, Gay, Bisexual, Transgender, and/or Queer Cancer Survivors.

作者信息

Ketcher Dana, Reblin Maija, Mansfield Kelly J, McCormick Rachael, Skinner Amber M, Otto Amy K, Tennant Karrin, Wawrzynski Sarah E, Reed Damon R, Cloyes Kristin G

机构信息

Memory Keepers Medical Discovery Team, University of Minnesota Medical School, Duluth Campus, Duluth, Minnesota, USA.

Department of Family Medicine, University of Vermont, Burlington, Vermont, USA.

出版信息

J Adolesc Young Adult Oncol. 2022 Dec;11(6):564-570. doi: 10.1089/jayao.2021.0210. Epub 2022 Feb 14.

DOI:10.1089/jayao.2021.0210
PMID:35166594
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9784592/
Abstract

This qualitative secondary analysis describes the perceived importance of familial, peer, and health system social support for an understudied group of cancer survivors: young adults (YAs), including those who are lesbian, gay, bisexual, transgender, and/or queer (LGBTQ). Semistructured interviews were conducted with YA cancer survivors as part of a study of social support networks and interactions. Team members conducted content analysis of interview transcripts; coding decisions were reviewed and discussed among the research team. Descriptions of social support were ultimately organized around family, peer, and health care system support. Twelve YA survivors recruited using two National Cancer Institute (NCI)-designated Comprehensive Cancer Centers and social media participated between August 2019 and May 2020. Survivors averaged 28.2 years old. Half of survivors self-identified as female; four survivors were LGBTQ. Participants described both the positives of social support, as well as barriers to meeting support needs, within the following three levels: familial, peer, and health care providers or system. YA survivors have needs that are often addressed by their families, peers, and the health care system. However, barriers such as complex relationship history and lack of targeted/tailored support programs can prevent survivors from receiving adequate support. The growing diversity and intersectionality represented in the YA population call for targeted support and training by the health care system to sufficiently support this population.

摘要

这项定性二次分析描述了家庭、同伴和卫生系统社会支持对于一类研究较少的癌症幸存者群体:年轻成年人(YAs),包括女同性恋、男同性恋、双性恋、跨性别者和/或酷儿(LGBTQ)群体的重要性。作为社会支持网络与互动研究的一部分,对年轻成年癌症幸存者进行了半结构化访谈。团队成员对访谈记录进行了内容分析;编码决策在研究团队内部进行了审查和讨论。社会支持的描述最终围绕家庭、同伴和医疗保健系统支持展开。2019年8月至2020年5月期间,通过两家美国国立癌症研究所(NCI)指定的综合癌症中心和社交媒体招募了12名年轻成年幸存者参与研究。幸存者的平均年龄为28.2岁。一半的幸存者自我认定为女性;四名幸存者为LGBTQ群体。参与者描述了在家庭、同伴和医疗保健提供者或系统这三个层面上社会支持的积极方面以及满足支持需求的障碍。年轻成年癌症幸存者的需求通常由他们的家庭、同伴和医疗保健系统来满足。然而,诸如复杂的关系史和缺乏针对性/量身定制的支持项目等障碍可能会阻碍幸存者获得足够的支持。年轻成年人群体中日益增长的多样性和交叉性要求医疗保健系统提供有针对性的支持和培训,以充分支持这一群体。