Ketcher Dana, Reblin Maija, Mansfield Kelly J, McCormick Rachael, Skinner Amber M, Otto Amy K, Tennant Karrin, Wawrzynski Sarah E, Reed Damon R, Cloyes Kristin G
Memory Keepers Medical Discovery Team, University of Minnesota Medical School, Duluth Campus, Duluth, Minnesota, USA.
Department of Family Medicine, University of Vermont, Burlington, Vermont, USA.
J Adolesc Young Adult Oncol. 2022 Dec;11(6):564-570. doi: 10.1089/jayao.2021.0210. Epub 2022 Feb 14.
This qualitative secondary analysis describes the perceived importance of familial, peer, and health system social support for an understudied group of cancer survivors: young adults (YAs), including those who are lesbian, gay, bisexual, transgender, and/or queer (LGBTQ). Semistructured interviews were conducted with YA cancer survivors as part of a study of social support networks and interactions. Team members conducted content analysis of interview transcripts; coding decisions were reviewed and discussed among the research team. Descriptions of social support were ultimately organized around family, peer, and health care system support. Twelve YA survivors recruited using two National Cancer Institute (NCI)-designated Comprehensive Cancer Centers and social media participated between August 2019 and May 2020. Survivors averaged 28.2 years old. Half of survivors self-identified as female; four survivors were LGBTQ. Participants described both the positives of social support, as well as barriers to meeting support needs, within the following three levels: familial, peer, and health care providers or system. YA survivors have needs that are often addressed by their families, peers, and the health care system. However, barriers such as complex relationship history and lack of targeted/tailored support programs can prevent survivors from receiving adequate support. The growing diversity and intersectionality represented in the YA population call for targeted support and training by the health care system to sufficiently support this population.
这项定性二次分析描述了家庭、同伴和卫生系统社会支持对于一类研究较少的癌症幸存者群体:年轻成年人(YAs),包括女同性恋、男同性恋、双性恋、跨性别者和/或酷儿(LGBTQ)群体的重要性。作为社会支持网络与互动研究的一部分,对年轻成年癌症幸存者进行了半结构化访谈。团队成员对访谈记录进行了内容分析;编码决策在研究团队内部进行了审查和讨论。社会支持的描述最终围绕家庭、同伴和医疗保健系统支持展开。2019年8月至2020年5月期间,通过两家美国国立癌症研究所(NCI)指定的综合癌症中心和社交媒体招募了12名年轻成年幸存者参与研究。幸存者的平均年龄为28.2岁。一半的幸存者自我认定为女性;四名幸存者为LGBTQ群体。参与者描述了在家庭、同伴和医疗保健提供者或系统这三个层面上社会支持的积极方面以及满足支持需求的障碍。年轻成年癌症幸存者的需求通常由他们的家庭、同伴和医疗保健系统来满足。然而,诸如复杂的关系史和缺乏针对性/量身定制的支持项目等障碍可能会阻碍幸存者获得足够的支持。年轻成年人群体中日益增长的多样性和交叉性要求医疗保健系统提供有针对性的支持和培训,以充分支持这一群体。