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迈向肯尼亚多发性骨髓瘤治疗的统一方法——首届多发性骨髓瘤大会会议记录。

Towards a unified approach for multiple myeloma care in Kenya - proceedings of the Inaugural Multiple Myeloma Congress.

机构信息

School of Medicine, Moi University, Eldoret, Kenya.

Academic Model Providing Access To Healthcare (AMPATH) Oncology Institute, Eldoret, Kenya.

出版信息

Pan Afr Med J. 2021 Dec 17;40:236. doi: 10.11604/pamj.2021.40.236.30742. eCollection 2021.

Abstract

The rising burden of multiple myeloma in Kenya has not been met by a commensurate effort for control. Patients and practitioners struggle with unavailability and unaffordability of diagnostics, drugs and stem cell transplant leading to presentation at advanced stages and under-treatment with increased morbidities and mortality. A concerted effort among stakeholders is urgently needed to develop strategies for myeloma control. The scarcity of providers also carries grave consequences for Kenyan patients. The Academic Model Providing Access To Healthcare (AMPATH) multiple myeloma program organized the Inaugural Virtual Multiple Myeloma Congress to achieve both interactive specialist instruction and stakeholder engagement. Expert presenters and panellists from diverse disciplines were invited to offer in-depth presentations on myeloma care and case studies from panellists´ practice were used to contextualize learning points and form a basis for generating debate on the challenges facing providers and opportunities for care improvement. An audience of health professionals offering care to myeloma patients was invited. The underlying principle of recommendations developed during the congress was collaboration among in-country and international practitioners, researchers and policy experts from private and public sector. This partnership of stakeholders bears the potential of pooling scarce resources and for collective advocacy towards better patient care.

摘要

肯尼亚多发性骨髓瘤负担不断加重,但控制工作却没有相应增加。患者和医生难以获得诊断、药物和干细胞移植,导致疾病处于晚期,治疗不足,发病率和死亡率增加。利益攸关方迫切需要共同努力,制定多发性骨髓瘤控制策略。提供者的稀缺也给肯尼亚患者带来了严重后果。学术模式提供医疗保健机会(AMPATH)多发性骨髓瘤项目组织了第一届虚拟多发性骨髓瘤大会,以实现互动专家指导和利益攸关方参与。邀请了来自不同学科的专家演讲者和小组成员,就骨髓瘤护理进行深入介绍,并使用小组成员的案例研究来使学习要点具体化,并为讨论提供者面临的挑战和改善护理的机会提供基础。邀请了为骨髓瘤患者提供护理的卫生专业人员参加。大会期间制定的建议的基本原则是,国内和国际从业者、研究人员以及来自私营和公共部门的政策专家之间的合作。这种利益攸关方的伙伴关系有可能汇集稀缺资源,并进行集体宣传,以改善患者护理。

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