Doctorate Program of Medical and Health Science, Faculty of Medicine, Public Health, and Nursing, Universitas Gadjah Mada, Yogyakarta, Indonesia, 55281, Indonesia.
Department of Neurology, Faculty of Medicine, Public Health, and Nursing, Universitas Gadjah Mada, Yogyakarta, Indonesia, 55281, Indonesia.
F1000Res. 2021 May 13;10:380. doi: 10.12688/f1000research.52135.2. eCollection 2021.
: Caregivers play a central role in post-stroke patients' care. However, the role of and problems managed by caregivers have not been widely studied, particularly in Indonesia. This study aims to explore the roles and problems of caregivers in post- stroke patients' care. : This was a qualitative study. Seven caregivers of post-stroke patients from the homecare clinic of Dr Sardjito General Hospital were purposely selected during January 2017 to June 2018. Focus group discussions were conducted to explore the roles and problems of caregiving. : Themes related to caregivers' roles were: connecting patients with medical personnel and other family members, maintaining patients' health conditions by fulfilling basic needs and assisting rehabilitation, as well as maintaining patients' psychological conditions by encouraging conversation, telling jokes, or recreation. On the other hand, themes related to caregivers' problems were: lack of knowledge caused by education inadequacy, underappreciated and unconcerned family, suboptimal service including limited physiotherapy and pharmacy resource, unthorough administration, lack of communication, physical limitations, and burnout, as well as uncooperative patients. Caregivers play essential roles as communicators and help to maintain patient's health conditions. Common problems are related to a lack of knowledge about strokes and a lack of attention from family. Further research to study the effects of these findings on the quality of life of both patient and their caregiver, as well as how to handle the caregiver issues should be investigated.
照顾者在脑卒中患者的护理中起着核心作用。然而,照顾者的角色和所面临的问题尚未得到广泛研究,特别是在印度尼西亚。本研究旨在探讨脑卒中患者照顾者的角色和问题。
这是一项定性研究。2017 年 1 月至 2018 年 6 月期间,从 Sardjito 综合医院家庭护理诊所中选择了 7 名脑卒中患者的照顾者作为研究对象。采用焦点小组讨论的方式来探讨照顾者的角色和问题。
照顾者将患者与医务人员和其他家庭成员联系起来,通过满足基本需求和协助康复来维持患者的健康状况,通过鼓励对话、讲笑话或娱乐来维持患者的心理状态。另一方面,与照顾者问题相关的主题有:教育不足导致知识匮乏,家庭不重视、不关心,服务不佳,包括物理治疗和药房资源有限,行政不彻底,沟通不畅,身体限制和倦怠,以及不合作的患者。照顾者作为沟通者发挥着重要作用,并有助于维持患者的健康状况。常见的问题与缺乏脑卒中相关知识以及家庭缺乏关注有关。应该进一步研究这些发现对患者及其照顾者生活质量的影响,以及如何处理照顾者的问题。