Lazar Amanda, Brewer Robin N, Kacorri Hernisa, Hong Jonggi, Punzalan Mary Nicole Dugay, Mahathir Maisarah, Vander Hyde Olivia, Ross Warren
University of Maryland, United States.
University of Michigan, United States.
Proc ACM Hum Comput Interact. 2021;5. doi: 10.1145/3479542.
Negative attitudes shape experiences with stigmatized conditions such as dementia, from affecting social relationships to influencing willingness to adopt technology. Consequently, attitudinal change has been identified as one lever to improve life for people with stigmatized conditions. Though recognized as a scaleable approach, social media has not been studied in terms of how it should best be designed or deployed to target attitudes and understanding of dementia. Through a mixed methods design with 123 undergraduate college students, we study the effect of being exposed to dementia-related media, including content produced by people with dementia. We selected undergraduate college students as the target of our intervention, as they represent the next generation that will work and interact with individuals with dementia. Our analysis describes changes over the period of two weeks in attitudes and understanding of the condition. The shifts in understanding of dementia that we found in our qualitative analysis were not captured by the instrument we selected to assess understanding of dementia. While small improvements in positive and overall attitudes were seen across all interventions and the control, we observe a different pattern with negative attitudes, where transcriptions of content produced by people with dementia significantly reduced negative attitudes. The discussion presents implications for supporting people with dementia as content producers, doing so in ways that best affect attitudes and understanding by drawing on research on cues and interactive media, and supporting students in changing their perspectives towards people with dementia.
消极态度塑造了人们对痴呆症等受污名化疾病的体验，从影响社会关系到影响采用技术的意愿。因此，态度转变已被视为改善患有受污名化疾病者生活的一个杠杆。尽管社交媒体被认为是一种可扩展的方法，但尚未从如何以最佳方式设计或部署以针对对痴呆症的态度和认知的角度进行研究。通过对123名本科大学生进行的混合方法设计，我们研究了接触与痴呆症相关的媒体（包括痴呆症患者制作的内容）的效果。我们选择本科大学生作为干预对象，因为他们代表了下一代将与痴呆症患者一起工作和互动的人群。我们的分析描述了两周内对该疾病的态度和认知的变化。我们在定性分析中发现的对痴呆症认知的转变并未被我们选择的评估对痴呆症认知的工具所捕捉。虽然在所有干预措施和对照组中，积极态度和总体态度都有小幅改善，但我们观察到消极态度呈现出不同的模式，即痴呆症患者制作的内容的文字记录显著降低了消极态度。讨论提出了支持痴呆症患者成为内容创作者的意义，通过借鉴关于线索和互动媒体的研究，以最佳方式影响态度和认知，并支持学生改变他们对痴呆症患者的看法。
