Washington University in St. Louis, Department of Medicine, Division of Palliative Medicine (K.T.W., J.J.B., P.E.T., D.P.O.), St. Louis, Missouri, USA.
Goldfarb School of Nursing at Barnes-Jewish College (A.P., J.J., D.P.O.), St. Louis, Missouri, USA.
J Pain Symptom Manage. 2022 Jun;63(6):971-979. doi: 10.1016/j.jpainsymman.2022.02.019. Epub 2022 Feb 19.
Many hospice patients were physically separated from family members and healthcare professionals during the early COVID-19 pandemic.
Researchers sought to describe the lived experience of physical separation for hospice patients and family caregivers who adhered to public health guidelines intended to limit the transmission of COVID-19 in the spring of 2020.
Researchers performed a secondary analysis of qualitative data collected during a multi-site clinical trial of an intervention that incorporated family caregivers into care plan reviews during biweekly hospice interdisciplinary team meetings. Twenty-eight adult family caregivers of hospice patients with cancer participated in at least one care plan review between March 7, 2020 and June 10, 2020. The final analytic dataset included the transcribed content of 60 care plan reviews, which were analyzed via reflexive thematic analysis.
Hospice patients and their family caregivers experienced physical separation as interrupted care that resulted in the potential for unmet informational, functional, and social and emotional needs. Connection strategies employed to adapt to care interruptions and address patient and caregiver needs were not consistently effective.
Inclusive, innovative connection strategies are needed to ensure that high-quality end-of-life care is provided to hospice patients and their family caregivers when physical presence must be limited.
许多临终关怀患者在 COVID-19 大流行早期与家人和医疗保健专业人员身体上分离。
研究人员旨在描述在 2020 年春季遵守旨在限制 COVID-19 传播的公共卫生指南的临终关怀患者和家庭护理人员的身体分离的生活体验。
研究人员对一项干预措施的多站点临床研究中收集的定性数据进行了二次分析，该干预措施将家庭护理人员纳入每周两次的临终关怀跨学科团队会议中的护理计划审查中。28 名癌症临终关怀患者的成年家庭护理人员至少参加了一次护理计划审查，时间在 2020 年 3 月 7 日至 6 月 10 日之间。最终分析数据集包括 60 次护理计划审查的转录内容，通过反思性主题分析进行了分析。
临终关怀患者及其家庭护理人员经历了身体上的分离，导致护理中断，可能无法满足信息、功能以及社会和情感需求。为适应护理中断和解决患者及护理人员的需求而采用的联系策略并不总是有效。
当必须限制身体存在时，需要采用包容性、创新性的联系策略，以确保为临终关怀患者及其家庭护理人员提供高质量的临终关怀。
