交叉挑战：新冠疫情期间癌症患者照料者的经历
Intersecting challenges: Cancer caregivers' experiences during COVID-19.
作者信息
Weiss Charlotte R, Johnson-Koenke Rachel, Hirschman Karen B
机构信息
School of Nursing, NewCourtland Center for Transitions and Health, University of Pennsylvania, Philadelphia, PA, USA.
College of Nursing, University of Colorado Anschutz Medical Campus, Denver, CO, USA.
出版信息
Palliat Care Soc Pract. 2025 Jun 11;19:26323524251346226. doi: 10.1177/26323524251346226. eCollection 2025.
BACKGROUND
The COVID-19 pandemic introduced a landscape that contributed to many unknowns and unmet needs among cancer family caregivers and their care recipients.
AIM
This secondary analysis qualitative study aimed to explore cancer family caregiver narratives for the societal and institutional contexts of caring for a person with advanced cancer during the early years of COVID-19.
DESIGN
Narrative inquiry was used in the parent study to co-create caregiver narratives.
METHODS
Narrative thematic analysis was used to identify themes of COVID-19 from five cancer caregiver narratives.
RESULTS
Thematic threads of COVID-19 were identified as short stories of tension woven throughout the caregiver narratives: advocacy for quality healthcare, the need to protect their person from the virus and medical/institutional disregard, financial strain, lack of social support, and the long goodbye. The findings further illustrate how COVID-19 and cancer intersect to influence a caregiver's healthcare experience and well-being.
CONCLUSION
Family-centered care strategies and policy changes are needed to better meet the complex needs of cancer caregivers during a pandemic and beyond.
背景
新冠疫情带来了一种局面，给癌症患者的家庭照料者及其照料对象带来了诸多未知因素和未得到满足的需求。
目的
这项二次分析定性研究旨在探讨新冠疫情初期癌症家庭照料者关于照料晚期癌症患者的社会和机构背景的叙述。
设计
在母研究中采用叙事探究法共同构建照料者的叙述。
方法
采用叙事主题分析法从五篇癌症照料者叙述中识别新冠疫情的主题。
结果
新冠疫情的主题线索被确定为贯穿照料者叙述的紧张小故事：对优质医疗保健的倡导、保护其照料对象免受病毒侵害以及医疗/机构的漠视、经济压力、缺乏社会支持以及漫长的告别。研究结果进一步说明了新冠疫情与癌症如何相互交织，影响照料者的医疗保健体验和幸福感。
结论
需要以家庭为中心的护理策略和政策变革，以更好地满足疫情期间及之后癌症照料者的复杂需求。
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