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重度哮喘、远程医疗与自我给药治疗:先倾听患者的声音。

Severe Asthma, Telemedicine, and Self-Administered Therapy: Listening First to the Patient.

作者信息

Guarnieri Gabriella, Caminati Marco, Achille Alessia, Vaia Rachele, Chieco Bianchi Fulvia, Senna Gianenrico, Vianello Andrea

机构信息

Respiratory Pathophysiology Unit, Department of Cardiac, Thoracic, Vascular Sciences and Public Health, University of Padova, Via Giustiniani 2, 35126 Padova, Italy.

Department of Medicine, University of Verona, Verona University Hospital, P.le L. Scuro 10, 37134 Verona, Italy.

出版信息

J Clin Med. 2022 Feb 12;11(4):960. doi: 10.3390/jcm11040960.

DOI:10.3390/jcm11040960
PMID:35207233
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8880352/
Abstract

Severe asthma patients are at an increased risk of major complications and they need to be monitored regularly. The COVID-19 pandemic has notably impacted on the health care resources. The telemedicine approach applied to the follow-up of asthmatic patients has been proven to be effective in monitoring their disease and their adherence to the therapy. The aim of our study was to investigate the satisfaction of severe asthma patients before the activation of a telemedicine management, as well as their current experience with self-administration of injection therapy. An questionnaire was developed and sent by e-mail to 180 severe asthma patients. Most of subjects, 82%, were confident with the idea of doing self-measurements and self-managing their disease. Further, 77% of subjects favoured to carry out virtual visits and telemedicine. Regarding the home treatment, 93% of patients considered the self-injection therapy easy, 94% of subjects felt safe, and 93% were not worried while self-administering. Only mild adverse events were reported in 22% of patients after self-administration. Our results showed an agreement between what is considered necessary and practicable by healthcare personnel and what is perceived by the severe asthma patients in terms of treatment and monitoring of the disease with Telehealth. Biologics have a safety profile and can be easily self-administred at home.

摘要

重度哮喘患者发生严重并发症的风险增加,需要定期监测。新冠疫情对医疗资源产生了显著影响。事实证明,应用远程医疗方法对哮喘患者进行随访,在监测其病情及治疗依从性方面是有效的。我们研究的目的是调查在启动远程医疗管理之前重度哮喘患者的满意度,以及他们目前自我注射治疗的体验。我们设计了一份问卷,并通过电子邮件发送给180名重度哮喘患者。大多数受试者(82%)对自我测量和自我管理疾病的想法充满信心。此外,77%的受试者倾向于进行虚拟问诊和接受远程医疗。关于家庭治疗,93%的患者认为自我注射治疗简单,94%的受试者感到安全,93%的患者在自我给药时并不担心。只有22%的患者在自我给药后报告了轻微不良事件。我们的结果表明,医护人员认为必要且可行的措施与重度哮喘患者在通过远程医疗进行疾病治疗和监测方面的认知之间存在一致性。生物制剂具有安全性,并且可以很容易地在家中自行给药。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ef0b/8880352/182513fbc2b0/jcm-11-00960-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ef0b/8880352/182513fbc2b0/jcm-11-00960-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ef0b/8880352/182513fbc2b0/jcm-11-00960-g001.jpg

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Digital Technologies for Monitoring and Improving Treatment Adherence in Children and Adolescents With Asthma: Scoping Review of Randomized Controlled Trials.用于监测和改善哮喘儿童及青少年治疗依从性的数字技术:随机对照试验的范围综述
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Characteristics and outcomes of patients enrolled in the Connect 360 benralizumab patient support programme in the UK: a retrospective cohort study.在英国参加 Connect 360 贝那鲁肽患者支持计划的患者的特征和结局:一项回顾性队列研究。
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