Kim Tierney, Martinez Kassandra, Cruz Breanna Lopez, Huang Jeannie S, Stadnick Nicole A
Point Loma Nazarene University, San Diego, CA, USA.
San Diego State University/UC San Diego Joint Doctoral Program in Clinical Psychology, San Diego, CA, USA.
J Autism Dev Disord. 2023 Apr;53(4):1476-1482. doi: 10.1007/s10803-021-05346-5. Epub 2022 Feb 25.
Limited guidance is available for families of youth with ASD (YASD) to prepare for invasive medical procedures. This study examined caregiver perspectives regarding YASD's gastrointestinal endoscopy (GE) experience to improve the endoscopy experience for YASD. Thirty-four caregivers of YASD, (M = 9.85 years, SD = 4.6) who underwent GE at Rady Children's Hospital, San Diego between May 2018 and July 2019 (identified via electronic health record) participated in a structured phone interview. Caregivers reported a positive experience due to the procedural team's responsiveness to the needs of YASD and appropriately answering/addressing questions/concerns. Caregivers reported a need for ASD-specific information on how to prepare for GE. Specific recommendations are discussed. Study findings offer strategies to improve the care experience of YASD undergoing GE.
目前针对患有自闭症谱系障碍的青少年（YASD）家庭为侵入性医疗程序做准备的指导有限。本研究调查了照顾者对YASD进行胃肠内镜检查（GE）经历的看法，以改善YASD的内镜检查体验。2018年5月至2019年7月期间在圣地亚哥拉迪儿童医院接受GE检查的34名YASD照顾者（M = 9.85岁，SD = 4.6）（通过电子健康记录识别）参与了一次结构化电话访谈。照顾者报告称，由于手术团队对YASD需求的响应以及对问题/担忧的恰当回答/处理，他们有积极的体验。照顾者报告说需要关于如何为GE做准备的特定于自闭症谱系障碍的信息。文中讨论了具体建议。研究结果提供了改善接受GE检查的YASD护理体验的策略。
