Esteve-Ríos Antonio, García-Sanjuán Sofía, Juliá-Sanchis Rocío, Monasor-Ortolá David, Cabañero-Martínez María José
Nurse and researcher in nursing Department, University of Alicante, Alicante, Spain.
Women Health. 2022 Mar;62(3):214-222. doi: 10.1080/03630242.2022.2044974. Epub 2022 Feb 28.
Compulsory home confinement due to COVID-19 pandemic has had an influence on the physical and emotional health. Nevertheless, it has been more prevalent in women and in people with chronic illness such as multiple sclerosis, so the aim of this study was to know the experience of women with multiple sclerosis during the home confinement period in Spain. Seven women aged over 18 years, with a definitive diagnosis of multiple sclerosis and who belonged to multiple sclerosis associations completed semi-structured interviews. Two main themes and multiple subthemes were identified. The first them was "living with multiple sclerosis during home confinement" which included the physical and emotional impact, confinement coping ability and time for reflection. The second theme was "the environment during confinement" and it included solidarity and support, family cooperation, importance of peer contact and adjustments in the health environment during the pandemic. The period of compulsory home confinement in Spain did not worsen the physical and emotional symptoms of these women. This might be related to the increased support they had received as well as the continuity of their rehabilitation activities at home. Regarding changes in health system, the participants referred the necessity to return to face-to-face visits.
由于新冠疫情实施的强制居家隔离对身心健康产生了影响。然而，这种情况在女性以及患有诸如多发性硬化症等慢性病的人群中更为普遍，因此本研究的目的是了解西班牙居家隔离期间多发性硬化症女性的经历。七名年龄超过18岁、被确诊为多发性硬化症且属于多发性硬化症协会的女性完成了半结构化访谈。确定了两个主要主题和多个子主题。第一个主题是“居家隔离期间与多发性硬化症共存”，包括身体和情绪影响、隔离应对能力以及反思时间。第二个主题是“隔离期间的环境”，包括团结与支持、家庭合作、同伴联系的重要性以及疫情期间健康环境的调整。西班牙的强制居家隔离期并未使这些女性的身体和情绪症状恶化。这可能与她们获得的支持增加以及在家中康复活动的连续性有关。关于卫生系统的变化，参与者提到了恢复面对面就诊的必要性。
