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自助麻风病群体成员的健康素养降低了尼泊尔农村地区对麻风病的刻板印象认同和与耻辱感相关的伤害。

Health literacy among self-help leprosy group members reduces stereotype endorsement and stigma-related harm in rural Nepal.

机构信息

Centre for Social Issues Research, University of Limerick, Limerick, Ireland.

Nepal Leprosy Trust, Lalgadh, Nepal.

出版信息

Health Soc Care Community. 2022 Nov;30(6):2230-2239. doi: 10.1111/hsc.13771. Epub 2022 Feb 27.

Abstract

There is increasing appreciation that group memberships can have both beneficial and damaging impacts on health. In collaboration with Nepal Leprosy Trust (NLT), this longitudinal study explores a group-based approach to stigma reduction among people affected by leprosy in rural Nepal (N = 71)-a hard to reach and underrepresented non-WEIRD population. Informed by the 'social cure' literature, and the progressive model of self-stigma, we use a longitudinal design. We found that a sense of belonging to a self-help group can facilitate education in terms of health literacy, and over time these two factors also have impacts on participants stigma. Specifically, self-help group belonging predicted improvements in health literacy, leading to reduced endorsement of negative stereotypes and thus less stigma-related harm among people affected by leprosy. The study offers promising evidence that group-based interventions, which support health education, can reduce the harmful impact of stigma in very challenging contexts.

摘要

越来越多的人认识到,群体归属既可能对健康产生有益影响,也可能产生有害影响。本纵向研究与尼泊尔麻风信托基金会(NLT)合作,探索了一种针对尼泊尔农村地区麻风病患者的基于群体的方法来减少污名(N=71),这些患者很难接触到,代表性不足,不属于 WEIRD 人群。该研究受“社会治疗”文献和自我污名的渐进模型的启发,采用了纵向设计。我们发现,对自助小组的归属感可以促进健康素养方面的教育,随着时间的推移,这两个因素也会对参与者的污名产生影响。具体而言,自助小组的归属感可以预测健康素养的提高,从而减少对负面刻板印象的认可,进而减少麻风病患者因污名而受到的伤害。这项研究提供了有希望的证据,表明支持健康教育的基于群体的干预措施可以在极具挑战性的环境中减少污名的有害影响。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c1a0/10078785/13ed1f3755c7/HSC-30-2230-g001.jpg

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