Health Promotion Research Center, 440827Iran University of Medical Sciences, Tehran, Iran.
Social Determinants of Health Research Center, Clinical Research Institute, 37555Urmia University of Medical Sciences, Urmia, Iran.
Inquiry. 2022 Jan-Dec;59:469580221081405. doi: 10.1177/00469580221081405.
Being COVID-19 positive and then dying causes a slew of personal, familial, and social issues for family members. Therefore, the current study was carried out to analyze the lived experiences and issues of COVID-19 victims' families in Tehran, Iran. The phenomenological approach was used in the qualitative analysis of 21 first-degree relatives of COVID-19 victims. From August 22 to October 21, 2020, data was gathered by phone (4 people) and in-person (17 people) using semi-structured interviews. The subjects were chosen through purposeful and snowball sampling. The MAXQDA-2018 program was used to organize the data, and the Colaizzi analytical technique was used to analyze it. Guba and Lincoln's criteria were also used to assess the findings' quality. After analyzing the data, 2 main categories and 14 subcategories were extracted, including (1) challenges in caring for a COVID-19 patient (being rejected, limited access to medical facilities, dissatisfaction with the behavior of medical staff, disruption of family life, the challenge of managing family members' behavior with the patient, and living with doubts and worries (2) challenges after a COVID-19 patient's death (incomplete farewell to the corpse, unbelievability of the death, ambiguity and tension in the burial process, lonely burial, the twinge of conscience, worry about not respecting the deceased, incomplete condolences, and abandonment). The troubles of victims' families can be ameliorated by developing the skills of caring for COVID-19 patients at home, providing medical and psychological services to families before and after the patient's death, appropriately informing the families to guarantee them about dignity and respect and respect of the deceased at the interment, and developing a culture of virtual condolence to provide emotional support to survivors.
新冠阳性患者及其家属会面临一系列个人、家庭和社会问题。因此，本研究旨在分析伊朗德黑兰地区新冠患者家属的生活体验和问题。本研究采用现象学方法，对 21 名新冠患者的一级亲属进行了定性分析。2020 年 8 月 22 日至 10 月 21 日，通过电话（4 人）和面对面访谈（17 人）收集数据。采用目的抽样和滚雪球抽样选择研究对象。使用 MAXQDA-2018 软件对数据进行组织，采用 Colaizzi 分析技术对数据进行分析。还使用了 Guba 和 Lincoln 的标准来评估研究结果的质量。对数据进行分析后，提取出 2 个主要类别和 14 个子类别，包括（1）照顾新冠患者的挑战（被拒绝、医疗设施有限、对医务人员行为不满、家庭生活中断、管理患者和家庭成员行为的挑战以及生活在疑虑和担忧中）和（2）新冠患者死亡后的挑战（对尸体的不完全告别、对死亡的难以置信、埋葬过程中的模糊和紧张、孤独的埋葬、内疚感、担心不尊重死者、不完整的慰问和被遗弃）。通过发展在家中照顾新冠患者的技能、在患者死亡前后为家庭提供医疗和心理服务、适当告知家庭以保证他们在葬礼过程中的尊严和对死者的尊重以及培养虚拟吊唁的文化，为幸存者提供情感支持，可以减轻患者家属的困扰。
