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接受姑息治疗的患者及其与医疗保健专业人员相遇的体验。

Patients Receiving Palliative Care and Their Experiences of Encounters With Healthcare Professionals.

机构信息

Health Sciences Unit, Faculty of Social Sciences, Tampere University, Finland.

Department of Nursing Science, University of Turku, Finland.

出版信息

Omega (Westport). 2024 Jun;89(2):497-513. doi: 10.1177/00302228221077486. Epub 2022 Mar 2.

Abstract

The study aimed to explore experiences of encounters with health care professionals among patients receiving palliative cancer care in specialist palliative care inpatient units. A qualitative explorative study design was conducted in a specialist palliative care inpatient setting. Data collection was implemented using semi-structured individual interviews (20 palliative care cancer patients) and analysed with inductive content analysis. Palliative care patients experienced both meaningful and disrespectful encounters with healthcare professionals. The meaningful encounters encompassed authentic and supportive experiences, while the disrespectful encounters included indifferent and inadequate experiences. Caring for a patient receiving palliative care requires care beyond tending to a patient's physical needs. Patients should be encountered holistically and as equal human beings without highlighting their roles as patients. The healthcare professionals and the organisations should also acknowledge the importance of time and effort spent for encounters and conversations with the patients instead of concentrating resources mainly on physical care.

摘要

本研究旨在探讨在专科姑息治疗住院病房接受姑息治疗的癌症患者与医疗保健专业人员接触的体验。一项定性探索性研究设计在专科姑息治疗住院病房进行。数据收集采用半结构式个体访谈(20 名姑息治疗癌症患者)进行,并采用归纳内容分析进行分析。姑息治疗患者在与医疗保健专业人员的接触中既体验到有意义的,也体验到不尊重的经历。有意义的接触包括真实和支持性的体验,而不尊重的接触则包括冷漠和不充分的体验。照顾接受姑息治疗的患者需要超越照顾患者身体需求的关怀。患者应作为完整的个体,与他们平等相待,而不突出他们作为患者的角色。医疗保健专业人员和组织还应认识到与患者进行接触和交谈所花费的时间和精力的重要性,而不是将主要资源集中在身体护理上。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4da9/11100268/e257283df7bf/10.1177_00302228221077486-fig1.jpg

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