University of Brasilia.
Federal University of Pernambuco.
Am J Bioeth. 2022 Jul;22(7):50-59. doi: 10.1080/15265161.2022.2040648. Epub 2022 Mar 7.
Increasing privacy concerns are arising from expanding use of aggregated personal information in health practices. Conversely, in light of the promising benefits of data driven healthcare, privacy is being frequently dismissed as outdated, costly and ultimately egotistical. This paper aims to review the theoretical framework on privacy in order to overcome the often simplistic debate between the primacy of individual or collective interests. As a result, it is argued that although privacy can be understood as freedom of personal choice in matters of sharing intimacy, it is foundational to both community belonging and to social and political organizations at large. Ethical decisions on the use of data analytics technologies in health practices should also take into account the social effects of violating privacy.
日益增长的隐私担忧源于个人信息在医疗实践中的广泛应用。相反，鉴于数据驱动医疗保健的广阔前景，隐私被频繁地视为过时、昂贵且自私的观念而遭到摒弃。本文旨在综述隐私理论框架，以克服个人利益或集体利益至上的简单化观点之争。因此，本文认为，隐私可以被理解为在分享亲密关系方面的个人选择自由，但它也是社区归属感以及整个社会和政治组织的基础。在医疗实践中使用数据分析技术的伦理决策也应该考虑侵犯隐私的社会影响。
