Birchley Giles, Huxtable Richard, Murtagh Madeleine, Ter Meulen Ruud, Flach Peter, Gooberman-Hill Rachael
Centre for Ethics in Medicine, University of Bristol, Bristol, UK.
Policy, Ethics and Life Sciences, Newcastle University, Newcastle, UK.
BMC Med Ethics. 2017 Apr 4;18(1):23. doi: 10.1186/s12910-017-0183-z.
Smart-home technologies, comprising environmental sensors, wearables and video are attracting interest in home healthcare delivery. Development of such technology is usually justified on the basis of the technology's potential to increase the autonomy of people living with long-term conditions. Studies of the ethics of smart-homes raise concerns about privacy, consent, social isolation and equity of access. Few studies have investigated the ethical perspectives of smart-home engineers themselves. By exploring the views of engineering researchers in a large smart-home project, we sought to contribute to dialogue between ethics and the engineering community.
Either face-to-face or using Skype, we conducted in-depth qualitative interviews with 20 early- and mid-career smart-home researchers from a multi-centre smart-home project, who were asked to describe their own experience and to reflect more broadly about ethical considerations that relate to smart-home design. With participants' consent, interviews were audio-recorded, transcribed and analysed using a thematic approach.
Two overarching themes emerged: in 'Privacy', researchers indicated that they paid close attention to negative consequences of potential unauthorised information sharing in their current work. However, when discussing broader issues in smart-home design beyond the confines of their immediate project, researchers considered physical privacy to a lesser extent, even though physical privacy may manifest in emotive concerns about being watched or monitored. In 'Choice', researchers indicated they often saw provision of choice to end-users as a solution to ethical dilemmas. While researchers indicated that choices of end-users may need to be restricted for technological reasons, ethical standpoints that restrict choice were usually assumed and embedded in design.
The tractability of informational privacy may explain the greater attention that is paid to it. However, concerns about physical privacy may reduce acceptability of smart-home technologies to future end-users. While attention to choice suggests links with privacy, this may misidentify the sources of privacy and risk unjustly burdening end-users with problems that they cannot resolve. Separating considerations of choice and privacy may result in more satisfactory treatment of both. Finally, through our engagement with researchers as participants this study demonstrates the relevance of (bio)ethics as a critical partner to smart-home engineering.
智能家居技术,包括环境传感器、可穿戴设备和视频设备,正吸引着家庭医疗保健领域的关注。此类技术的开发通常基于其有潜力增强长期慢性病患者的自主性这一理由。对智能家居伦理的研究引发了对隐私、同意、社会隔离和获取公平性的担忧。很少有研究调查过智能家居工程师自身的伦理观点。通过在一个大型智能家居项目中探索工程研究人员的观点,我们试图为伦理学界与工程界之间的对话做出贡献。
我们通过面对面或使用Skype的方式,对一个多中心智能家居项目中的20位处于职业生涯早期和中期的智能家居研究人员进行了深入的定性访谈,要求他们描述自己的经历,并更广泛地思考与智能家居设计相关的伦理考量。在参与者同意的情况下,访谈进行了录音、转录,并采用主题分析法进行分析。
出现了两个总体主题:在“隐私”方面,研究人员表示,他们在当前工作中密切关注潜在的未经授权信息共享的负面后果。然而,当讨论超出其当前项目范围的智能家居设计的更广泛问题时,研究人员对物理隐私的考虑较少,尽管物理隐私可能表现为对被监视或监控的情感担忧。在“选择”方面,研究人员表示,他们经常将向最终用户提供选择视为解决伦理困境的一种方法。虽然研究人员表示,出于技术原因,最终用户的选择可能需要受到限制,但限制选择的伦理立场通常被假定并嵌入到设计中。
信息隐私的可处理性可能解释了人们对它给予更多关注的原因。然而,对物理隐私的担忧可能会降低智能家居技术对未来最终用户的可接受性。虽然对选择的关注表明与隐私有关联,但这可能会错误地识别隐私的来源,并有可能不公正地给最终用户带来他们无法解决的问题。将选择和隐私的考量分开可能会使两者都得到更令人满意的处理。最后,通过让研究人员作为参与者参与本研究,我们证明了(生物)伦理学作为智能家居工程的关键伙伴的相关性。