Clinic of Physical Medicine and Rehabilitation, Department of Spinal Cord Injuries; Department of Medical Quality Registries, St Olavs Hospital, Trondheim University Hospital; Department of Public Health and Nursing, Norwegian University of Science and Technology, Trondheim, Norway.
J Rehabil Med. 2022 Apr 7;54:jrm00278. doi: 10.2340/jrm.v54.2162.
To investigate how next of kin of persons with spinal cord injury (SCI) experience various life areas in terms of caregiving, participation, and quality of life, and the impact of personal characteristics of next of kin and SCI characteristics.
Survey of next of kin linked to data on persons with SCI in the Norwegian SCI Registry.
A total of 73 next of kin identified by persons with SCI.
Outcome measures were caregiving (4 measures), participation (1 measure), and quality of life (2 measures).
Participants (73% partners, 73% female, mean age 56.4 years) gave various support to the person with SCI and considered it important to care and were happy to do so. Three-quarters of participants reported good mental health and life satisfaction, while one-quarter reported high levels of caregiver strain, especially related to emotional adjustments. Higher levels of caregiver strain were reported by participants of working age (< 67 years), and by those with middle level education.
The majority of next of kin of persons living with SCI in Norway are doing well in most life areas. Caregiver strain may be reduced by strengthening the ability of next of kin to cope with emotional challenges.
调查脊髓损伤（SCI）患者的亲属在照顾、参与和生活质量方面如何体验不同的生活领域，以及亲属和 SCI 特征的个人特征的影响。
对挪威 SCI 登记处中 SCI 患者数据相关的亲属进行调查。
共确定了 73 名 SCI 患者的亲属。
结局指标包括照顾（4 项措施）、参与（1 项措施）和生活质量（2 项措施）。
参与者（73%的配偶，73%的女性，平均年龄 56.4 岁）为 SCI 患者提供了各种支持，并认为照顾他们很重要，并且很乐意这样做。四分之三的参与者报告心理健康和生活满意度良好，而四分之一的参与者报告了较高水平的照顾者压力，尤其是与情绪调整有关的压力。工作年龄（<67 岁）的参与者和中等教育水平的参与者报告了更高水平的照顾者压力。
挪威生活在 SCI 中的大多数患者的亲属在大多数生活领域都表现良好。通过增强亲属应对情绪挑战的能力，可以减轻照顾者的压力。
