Norup Anne, Soendergaard Pernille Langer, Wolffbrandt Mia Moth, Biering-Sørensen Fin, Arango-Lasprilla Juan Carlos, Dornonville de la Cour Frederik Lehman
Neurorehabilitation Research & Knowledge Centre, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Glostrup, Denmark; Department of Neuroscience, University of Copenhagen, Copenhagen, Denmark.
Neurorehabilitation Research & Knowledge Centre, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Glostrup, Denmark; Neurorehabilitation-CPH, City of Copenhagen, Hellerup, Denmark.
J Rehabil Med. 2024 May 2;56:jrm34732. doi: 10.2340/jrm.v56.34732.
To investigate (i) psychometric properties of the Danish version of the Caregiver Burden Scale, (ii) predictors of burden in caregivers of persons with stroke, spinal cord injury, or traumatic brain injury, and (iii) severity of caregiver burden, and compare level of severity of burden in caregivers of persons with stroke, spinal cord injury, or traumatic brain injury.
Cross-sectional study.
Pooled sample of 122 caregivers.
Psychometric properties including internal consistency, floor and ceiling effects, inter-item and item-total correlation were investigated using the Caregiver Burden Scale. Severity of burden was compared using Fisher's exact test and ANOVA, and predictors of burden were investigated using multiple linear regression models.
The total burden score exhibited good internal consistency (α = 0.93), with no floor or ceiling effects. Longer time as a caregiver was a significant predictor of higher total score. The majority (52.2%) reported a low level of caregiver burden (below cut-off of 2.00). Mean scores on the Caregiver Burden Scale were not significantly different among caregivers across diagnostic groups. Differences were found when comparing spinal cord injury caregivers with brain injury caregivers (traumatic brain injury and stroke, collectively), χ2(2) = 6.38, p = 0.04, as spinal cord injury caregivers were more likely to report low levels of burden.
Good psychometric properties were reported, and most caregivers reported a low level of burden, and longer time as a caregiver was associated with higher burden. Consequently, the Caregiver Burden Scale is a valid measure to use when measuring burden in caregivers of stroke, spinal cord injury, and traumatic brain injury patients.
(i) 调查丹麦版照顾者负担量表的心理测量特性；(ii) 中风、脊髓损伤或创伤性脑损伤患者的照顾者负担的预测因素；(iii) 照顾者负担的严重程度，并比较中风、脊髓损伤或创伤性脑损伤患者的照顾者负担的严重程度水平。
横断面研究。
122名照顾者的汇总样本。
使用照顾者负担量表调查心理测量特性，包括内部一致性、地板效应和天花板效应、项目间相关性和项目总分相关性。使用Fisher精确检验和方差分析比较负担的严重程度，并使用多元线性回归模型调查负担的预测因素。
总负担得分显示出良好的内部一致性（α = 0.93），没有地板效应或天花板效应。照顾者的时间越长，总分越高，这是一个显著的预测因素。大多数（52.2%）报告照顾者负担水平较低（低于临界值2.00）。不同诊断组的照顾者在照顾者负担量表上的平均得分没有显著差异。在比较脊髓损伤照顾者与脑损伤照顾者（创伤性脑损伤和中风，合并）时发现了差异，χ2(2) = 6.38，p = 0.04，因为脊髓损伤照顾者更有可能报告低负担水平。
报告了良好的心理测量特性，大多数照顾者报告负担水平较低，照顾者时间越长，负担越高。因此，照顾者负担量表是测量中风、脊髓损伤和创伤性脑损伤患者照顾者负担时的有效测量工具。
