Sleeman Sophia H E, Reuvers Milou J P, Manten-Horst Eveliene, Verhees Bram, Patterson Pandora, Janssen Silvie H M, Husson Olga
Dutch AYA 'Young & Cancer' Care Network, 3511 DT Utrecht, The Netherlands.
Department of Medical Oncology, Netherlands Cancer Institute, 1066 CX Amsterdam, The Netherlands.
Cancers (Basel). 2022 Feb 24;14(5):1178. doi: 10.3390/cancers14051178.
Adolescent and young adult (AYA) cancer patients report a need for support to stay in contact with loved ones after diagnosis. In response to this the Dutch AYA 'Young & Cancer' Care Network co-created the mobile application 'AYA Match'. This study describes the cocreational process, the characteristics of the users and their expectations regarding the app. 121 AYA cancer patients and 37 loved ones completed a questionnaire. 68.6% of the loved ones reported 'staying in contact' and 'finding out about the needs and wishes of 'their AYA' during this time' as the main reasons for downloading the application. 41.1% of the AYA cancer patients expected the app to help them communicate to their loved ones what they do or don't want and need. 60% of the loved ones indicated that they would like to use the application to offer help to 'their AYA' with their daily tasks. Patients and their loved ones have similar expectations when it comes to 'normalizing' contact, increasing empathy and mutual understanding about needs and emotions. The AYA Match app could be an adequate answer to the issues experienced regarding contact, support and mutual understanding.
青少年和青年（AYA）癌症患者表示，在确诊后需要获得支持以便与亲人保持联系。作为对此的回应，荷兰AYA“年轻与癌症”关爱网络共同创建了移动应用程序“AYA Match”。本研究描述了共创过程、用户特征以及他们对该应用程序的期望。121名AYA癌症患者和37名亲人完成了一份调查问卷。68.6%的亲人表示，“在此期间与（患者）保持联系”以及“了解‘他们的AYA’的需求和愿望”是下载该应用程序的主要原因。41.1%的AYA癌症患者期望该应用程序能帮助他们向亲人传达自己的想法、需求和愿望。60%的亲人表示，他们希望使用该应用程序在日常事务上为“他们的AYA”提供帮助。在使联系“正常化”、增强同理心以及增进对需求和情感的相互理解方面，患者及其亲人有着相似的期望。AYA Match应用程序或许能充分解决在联系、支持和相互理解方面所遇到的问题。
