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耳鸣对重要他人的影响。

The Effects of Tinnitus on Significant Others.

作者信息

Beukes Eldre Wiida, Ulep Alyssa Jade, Andersson Gerhard, Manchaiah Vinaya

机构信息

Vision and Hearing Sciences Research Group, Anglia Ruskin University, Cambridge CB1 1TP, UK.

Virtual Hearing Lab, Collaborative Initiative between University of Colorado School of Medicine and University of Pretoria, Aurora, CO 80045, USA.

出版信息

J Clin Med. 2022 Mar 3;11(5):1393. doi: 10.3390/jcm11051393.

DOI:10.3390/jcm11051393
PMID:35268484
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8911454/
Abstract

Although chronic conditions could cause third-party disability for significant others (SOs), little is known regarding the impact of tinnitus on SO. This study aimed to identify the effects of tinnitus on SOs. SOs of individuals with tinnitus were invited to participate in this study. SOs completed three open-ended questions focusing on the effects of tinnitus. Individuals with tinnitus completed the Tinnitus Functional Index as a self-reported measure of tinnitus severity. A mixed-methods analysis approach was undertaken. Of the 156 SOs responding, 127 (85%) reported that tinnitus impacted them. The impact surrounded sound adjustments, activity limitations, additional demands, emotional toll, and helplessness. Tinnitus negatively affected the relationship for 92 (58%) due to communication frustrations and growing apart. When asked if tinnitus had any positive effects, 64 (47%) SOs reported positive lifestyle adaptions, personal development, health awareness, and a changed outlook. There was no association between the level of tinnitus severity and SOs reporting that tinnitus had an impact on them individually, their relationships, or those reporting positive experiences. The study highlighted the third-party disability many SOs of individuals with tinnitus experience. The results indicate that SOs may benefit from a shared intervention to help mitigate the negative effects through a better understanding of tinnitus.

摘要

尽管慢性病可能会给重要他人(SOs)带来第三方残疾,但关于耳鸣对重要他人的影响却知之甚少。本研究旨在确定耳鸣对重要他人的影响。邀请耳鸣患者的重要他人参与本研究。重要他人完成了三个开放性问题,重点关注耳鸣的影响。耳鸣患者完成了耳鸣功能指数,作为耳鸣严重程度的自我报告指标。采用了混合方法分析方法。在156名回复的重要他人中,127名(85%)报告耳鸣对他们有影响。影响包括声音调整、活动限制、额外需求、情感负担和无助感。由于沟通挫折和关系疏远,耳鸣对92名(58%)的关系产生了负面影响。当被问及耳鸣是否有任何积极影响时,64名(47%)重要他人报告了积极的生活方式适应、个人发展、健康意识和观念转变。耳鸣严重程度与报告耳鸣对他们个人、他们的关系有影响或报告有积极体验的重要他人之间没有关联。该研究强调了许多耳鸣患者的重要他人所经历的第三方残疾。结果表明,重要他人可能会从共享干预中受益,通过更好地了解耳鸣来帮助减轻负面影响。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/486b/8911454/855bc7ee5344/jcm-11-01393-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/486b/8911454/d045d84d2811/jcm-11-01393-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/486b/8911454/b510a16ec840/jcm-11-01393-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/486b/8911454/855bc7ee5344/jcm-11-01393-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/486b/8911454/d045d84d2811/jcm-11-01393-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/486b/8911454/b510a16ec840/jcm-11-01393-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/486b/8911454/855bc7ee5344/jcm-11-01393-g003.jpg

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本文引用的文献

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Internet-Based Audiologist-Guided Cognitive Behavioral Therapy for Tinnitus: Randomized Controlled Trial.基于互联网的听力学医师指导的耳鸣认知行为疗法:随机对照试验。
J Med Internet Res. 2022 Feb 14;24(2):e27584. doi: 10.2196/27584.
2
Online Discussions About Tinnitus: What Can We Learn From Natural Language Processing of Reddit Posts?在线耳鸣讨论:从 Reddit 帖子的自然语言处理中我们能学到什么?
Am J Audiol. 2022 Sep 21;31(3S):993-1002. doi: 10.1044/2021_AJA-21-00158. Epub 2022 Feb 7.
3
Development and psychometric validation of a questionnaire assessing the impact of tinnitus on significant others.
耳鸣患者重要他人的第三方残疾情况:一项横断面调查设计
Audiol Res. 2023 May 23;13(3):378-388. doi: 10.3390/audiolres13030033.
4
Experiential Characteristics among Individuals with Tinnitus Seeking Online Psychological Interventions: A Cluster Analysis.寻求在线心理干预的耳鸣患者的体验特征:一项聚类分析。
Brain Sci. 2022 Sep 9;12(9):1221. doi: 10.3390/brainsci12091221.
评估耳鸣对重要他人影响的问卷的编制及心理测量学验证。
J Commun Disord. 2022 Jan-Feb;95:106159. doi: 10.1016/j.jcomdis.2021.106159. Epub 2021 Oct 29.
4
Audiologist-Supported Internet-Based Cognitive Behavioral Therapy for Tinnitus in the United States: A Pilot Trial.美国听力学支持的基于互联网的耳鸣认知行为疗法:一项试点试验。
Am J Audiol. 2021 Sep 10;30(3):717-729. doi: 10.1044/2021_AJA-20-00222. Epub 2021 Aug 25.
5
Dismantling internet-based cognitive behavioral therapy for tinnitus. The contribution of applied relaxation: A randomized controlled trial.拆除基于互联网的耳鸣认知行为疗法。应用放松的作用:一项随机对照试验。
Internet Interv. 2021 May 12;25:100402. doi: 10.1016/j.invent.2021.100402. eCollection 2021 Sep.
6
Exploring tinnitus heterogeneity.探讨耳鸣的异质性。
Prog Brain Res. 2021;260:79-99. doi: 10.1016/bs.pbr.2020.05.022. Epub 2020 Jul 24.
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J Consult Clin Psychol. 2019 Sep;87(9):802-814. doi: 10.1037/ccp0000425.
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Tinnitus: How Partners Can Help?耳鸣:伴侣如何提供帮助?
Am J Audiol. 2019 Mar 15;28(1):85-94. doi: 10.1044/2018_AJA-18-0046.
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Effectiveness of Guided Internet-Based Cognitive Behavioral Therapy vs Face-to-Face Clinical Care for Treatment of Tinnitus: A Randomized Clinical Trial.基于互联网的认知行为疗法与面对面临床护理治疗耳鸣的疗效比较:一项随机临床试验。
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