School of Nursing, Hanyang University, 222 Wangsimni-ro Seongdong-gu, Seoul 04763, Korea.
Int J Environ Res Public Health. 2022 Feb 22;19(5):2521. doi: 10.3390/ijerph19052521.
This study aimed to examine the unmet information needs of people with Parkinson's disease and their family members by analyzing Parkinson's disease-related posts in online communities. Data were collected from one of the largest online people with Parkinson's disease communities used in South Korea. The word cloud, the main questions from the free-posting messages, as well as the frequently asked symptoms and side effects of the medication, were analyzed using content analysis. The commonly mentioned main questions from the free-posting messages have pertained to treatment-related information, such as effects and side effects of medication, deep brain stimulation, and complementary and alternative medicine. People with Parkinson's disease and their families depend not only on health care providers but also on using online communities to find the information that they need. However, there is a need for treatment-specific information, such as anti-Parkinson drugs, deep brain stimulation, and complementary alternative therapies. As for the method of providing information for people with Parkinson's disease and their families, it will be effective to provide tailored education services using online communities and social media by using their information needs and preferred resources.
本研究旨在通过分析在线社区中与帕金森病相关的帖子，来研究帕金森病患者及其家属未满足的信息需求。研究数据来自韩国最大的在线帕金森病患者社区之一。使用内容分析法对词云、自由发帖信息中的主要问题以及药物的常见症状和副作用进行了分析。自由发帖信息中常见的主要问题涉及治疗相关信息，如药物的效果和副作用、脑深部刺激和补充替代疗法。帕金森病患者及其家属不仅依赖于医疗保健提供者，还依赖于使用在线社区来寻找他们所需的信息。但是，需要提供针对特定治疗方法的信息，如抗帕金森病药物、脑深部刺激和补充替代疗法。至于为帕金森病患者及其家属提供信息的方法，通过使用在线社区和社交媒体，根据他们的信息需求和偏好资源，提供定制化的教育服务将是有效的。
