Institute of Cardiovascular and Medical Sciences, University of Glasgow, Glasgow Royal Infirmary, Glasgow, UK.
Improvement Analytics Unit, The Health Foundation, London, UK.
Lancet Healthy Longev. 2022 Mar;3(3):e186-e193. doi: 10.1016/S2666-7568(22)00010-1. Epub 2022 Mar 7.
Reforms to social care in response to the COVID-19 pandemic, in the UK and internationally, place data at the heart of proposed innovations and solutions. The principles are not well established of what constitutes core, or minimum, data to support care home residents. Often, what is included privileges data on resident health over day-to-day care priorities and quality of life. This Personal View argues for evidence-based principles on which to base the development of a UK minimum data set (MDS) for care homes. Co-produced work involving care home staff and older people working with stakeholders is required to define and agree the format, content, structure, and operationalisation of the MDS. Implementation decisions will determine the success of the MDS, affecting aspects including data quality, completeness, and usability. Care home staff who collect the data need to benefit from the MDS and see value in their contribution, and residents must derive benefit from data collection and synthesis.
为应对 COVID-19 大流行而对社会关怀进行的改革在英国和国际上都将数据置于拟议创新和解决方案的核心位置。目前尚未明确界定哪些数据是支持养老院居民的核心或最低数据。通常,所包含的数据优先考虑居民的健康,而不是日常护理重点和生活质量。本个人观点主张在制定英国养老院最低数据集 (MDS) 时应遵循基于证据的原则。需要由养老院工作人员和与利益相关者合作的老年人共同开展工作,以定义和商定 MDS 的格式、内容、结构和运作方式。实施决策将决定 MDS 的成败,影响方面包括数据质量、完整性和可用性。收集数据的养老院工作人员必须从 MDS 中受益,并看到自己的贡献有价值,居民也必须从数据收集和综合中受益。