Xiao Lily Dongxia, Wang Jing, Ratcliffe Julie, Ullah Shahid, Brodaty Henry, Brijnath Bianca, Chang Hui-Chen Rita, Wang Huali, Chang Chia-Chi, Kwok Timothy, Zhu Mingxia
College of Nursing and Health Sciences, Flinders University, Adelaide, South Australia, Australia.
Faculty of Nursing, Health Science Center, Xi'an Jiaotong University, Xi'an, China.
J Adv Nurs. 2022 May;78(5):1524-1533. doi: 10.1111/jan.15216. Epub 2022 Mar 14.
To describe a nurse-led multicentre randomized controlled trial protocol developed to evaluate the effectiveness and cost-effectiveness of a Chinese iSupport for Dementia program in Australia and Greater China including mainland China, Taiwan, Hong Kong and Macau.
A multicentre randomized controlled trial following the SPIRIT checklist.
Participants in the study will be recruited from Australia and Greater China and will be randomly assigned to the intervention group or the usual care group. Interventions will include self-learning of the iSupport program, virtual peer support and nurse program facilitator support for 6 months. Primary outcome measures will be the 12-Item Short-Form Health Survey. Secondary outcome measures will include: Revised Scale for Caregiving Self-efficacy; Quality of Social Support Scale; Revised Memory and Behaviour Problem Checklist; the Quality of Life in Alzheimer's Disease-Proxy; usages of care services; and cost-effectiveness of the intervention. Outcomes will be measured at baseline, 6 months and 9 months from the baseline. Caregivers' experiences of the peer support will be explored. This project was funded by the National Foundation for Australia-China Relations, Australian Government (Project ID: NFACR216). The total amount is $440,000 Australian dollars (or £ 236,231).
Approximately, 20% of people living with dementia in the world live in Australia and Greater China. Older Chinese are usually cared for by family caregivers at home due to the influence of Confucianism. However, free and online psychoeducation programs for this large cohort of caregivers are not available or accessible. The World Health Organization iSupport for Dementia is an evidence-based online psychoeducation program for caregivers. Implementing a culturally adapted Chinese iSupport program will address this gap in supporting caregivers.
This study will provide research evidence on effectiveness and cost-effectiveness of an online psychoeducation program for caregivers. Findings will inform policy and practice development.
描述一项由护士主导的多中心随机对照试验方案，该方案旨在评估在中国内地、台湾、香港和澳门地区以及澳大利亚开展的针对痴呆症患者的“iSupport中国项目”的有效性和成本效益。
遵循SPIRIT清单的多中心随机对照试验。
本研究的参与者将从澳大利亚和大中华地区招募，并随机分配到干预组或常规护理组。干预措施将包括iSupport项目的自学、虚拟同伴支持以及护士项目促进者为期6个月的支持。主要结局指标将是12项简短健康调查问卷。次要结局指标将包括：修订后的照顾者自我效能量表；社会支持质量量表；修订后的记忆与行为问题清单；阿尔茨海默病患者生活质量代理量表；护理服务的使用情况；以及干预措施的成本效益。结局指标将在基线、基线后的6个月和9个月进行测量。将探索照顾者对同伴支持的体验。本项目由澳大利亚政府澳中关系全国基金会资助（项目编号：NFACR216）。总金额为44万澳元（或236,231英镑）。
全球约20%的痴呆症患者生活在澳大利亚和大中华地区。由于儒家思想的影响，中国老年人通常由家庭照顾者在家中照料。然而，针对这一庞大照顾者群体的免费在线心理教育项目并不存在或难以获取。世界卫生组织的“痴呆症iSupport项目”是一项针对照顾者的循证在线心理教育项目。实施经过文化调适的中国iSupport项目将填补支持照顾者方面的这一空白。
本研究将为针对照顾者的在线心理教育项目的有效性和成本效益提供研究证据。研究结果将为政策和实践发展提供参考。
