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医学与社会冻卵:女性决策中未来选择的重要性。

Medical versus social egg freezing: the importance of future choice for women's decision-making.

机构信息

RHEA (Research Centre Gender, Diversity and Intersectionality), Vrije Universiteit Brussel, Brussels, Belgium.

Centre for Health and Society, Department of Sociology and Policy, Aston University, B4 7ET, Birmingham, UK.

出版信息

Monash Bioeth Rev. 2022 Dec;40(2):145-156. doi: 10.1007/s40592-022-00153-9. Epub 2022 Mar 20.

DOI:10.1007/s40592-022-00153-9
PMID:35306627
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9700598/
Abstract

While the literature on oncofertility decision-making was central to the bioethics debate on social egg freezing when the practice emerged in the late 2000s, there has been little discussion juxtaposing the two forms of egg freezing since. This article offers a new perspective on this debate by comparing empirical qualitative data of two previously conducted studies on medical and social egg freezing. We re-analysed the interview data of the two studies and did a thematic analysis combined with interdisciplinary collaborative auditing for empirical ethics projects. Despite their different contexts, major similarities in women's decision-making and reasoning were found. We developed two main common themes. Firstly, women felt a clear need to plan for future options. Secondly, they manipulated decision-times by postponing definitive decisions and making micro-decisions. The comparison highlights that the passage of time and the preservation of future choice seems to permeate all aspects of the patient experiences in both studies. As a result of considering real-world lived experiences, we suggest that there are many overlaps in women's reasoning about egg freezing regardless of why they are making a decision to freeze. These overlaps are morally relevant and thus need to be further integrated into the existing arguments that have been canvassed in the flourishing egg freezing and fertility preservation debates across the field, and in policy and practice globally.

摘要

虽然 21 世纪末,当社会层面的卵子冷冻技术出现时,有关肿瘤生育力决策的文献成为生育伦理讨论的核心,但此后很少有文献将这两种卵子冷冻形式并列讨论。本文通过比较两项关于医学和社会层面卵子冷冻的先前研究的实证定性数据,为这一争论提供了一个新视角。我们重新分析了这两项研究的访谈数据,并对其进行了主题分析,同时对实证伦理项目进行了跨学科协作审计。尽管这两项研究的背景不同,但女性在决策和推理方面存在很大的相似之处。我们得出了两个主要的共同主题。首先,女性感到有明确的需求来规划未来的选择。其次,她们通过推迟明确的决定和做出微观决策来操纵决策时间。这种比较凸显了时间的流逝和未来选择的保留似乎渗透到了两项研究中患者经历的各个方面。通过考虑现实生活中的经验,我们认为,无论女性为何决定冷冻卵子,她们在考虑卵子冷冻时的推理有许多重叠之处。这些重叠在道德上是相关的,因此需要进一步纳入该领域中蓬勃发展的卵子冷冻和生育力保存辩论以及全球政策和实践中已经提出的现有论点。

相似文献

1
Medical versus social egg freezing: the importance of future choice for women's decision-making.医学与社会冻卵:女性决策中未来选择的重要性。
Monash Bioeth Rev. 2022 Dec;40(2):145-156. doi: 10.1007/s40592-022-00153-9. Epub 2022 Mar 20.
2
'I feel that injustice is being done to me': a qualitative study of women's viewpoints on the (lack of) reimbursement for social egg freezing.“我觉得我受到了不公正的待遇”:一项关于女性对(缺乏)社会卵子冷冻报销看法的定性研究。
BMC Med Ethics. 2022 Mar 29;23(1):35. doi: 10.1186/s12910-022-00774-z.
3
An unconventional path to conventional motherhood: A qualitative study of women's motivations and experiences regarding social egg freezing in the Netherlands.非常规途径实现传统母性:荷兰社会冻卵女性动机与体验的定性研究。
J Gynecol Obstet Hum Reprod. 2022 Feb;51(2):102268. doi: 10.1016/j.jogoh.2021.102268. Epub 2021 Nov 23.
4
"It's Just Another Added Benefit": Women's Experiences with Employment-Based Egg Freezing Programs.“这只是另一个额外的好处”:女性参与就业型卵子冷冻计划的体验。
AJOB Empir Bioeth. 2021 Jan-Mar;12(1):41-52. doi: 10.1080/23294515.2020.1823908. Epub 2020 Sep 29.
5
Beyond individualisation: towards a more contextualised understanding of women's social egg freezing experiences.超越个体化:对女性社会卵子冷冻体验的更具情境化理解。
J Med Ethics. 2022 Jun;48(6):386-390. doi: 10.1136/medethics-2020-107190. Epub 2021 Apr 12.
6
The revision of the French bioethics law and the questions it raises for the future of funding for egg freezing.法国生物伦理法的修订及其对卵子冷冻未来资金问题的影响。
Reprod Biomed Online. 2022 Apr;44(4):591-593. doi: 10.1016/j.rbmo.2021.12.002. Epub 2021 Dec 9.
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Perceptions, outcomes, and regret following social egg freezing in the UK; a cross-sectional survey.英国社会卵子冷冻的认知、结果和遗憾:一项横断面调查。
Acta Obstet Gynecol Scand. 2020 Mar;99(3):324-332. doi: 10.1111/aogs.13763. Epub 2019 Nov 25.
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Egg freezing for non-medical uses: the lack of a relational approach to autonomy in the new Israeli policy and in academic discussion.非医疗目的的卵子冷冻:新以色列政策和学术讨论中缺乏对自主性的关系方法。
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Egg freezing, genetic relatedness, and motherhood: A binational empirical bioethical investigation of women's views.卵子冷冻、遗传关联性与母性:对女性观点的跨国实证生物伦理调查。
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10
Elective egg freezers' disposition decisions: a qualitative study.择期冻卵者的处置决策:一项定性研究。
Fertil Steril. 2023 Jul;120(1):145-160. doi: 10.1016/j.fertnstert.2023.02.022. Epub 2023 Apr 7.

引用本文的文献

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Front Endocrinol (Lausanne). 2024 Dec 20;15:1467213. doi: 10.3389/fendo.2024.1467213. eCollection 2024.
2
Egg Cryopreservation for Social Reasons-A Literature Review.基于社会原因的卵子冷冻保存——文献综述
Healthcare (Basel). 2024 Dec 2;12(23):2421. doi: 10.3390/healthcare12232421.
3
The importance of social oocyte cryopreservation in supporting local municipalities: A prospective study.社会卵子冷冻保存在支持地方政府中的重要性:一项前瞻性研究。
Womens Health (Lond). 2024 Jan-Dec;20:17455057241276256. doi: 10.1177/17455057241276256.
4
Eggsurance? A randomized controlled trial of a decision aid for elective egg freezing.“卵子保险”?一项关于选择性卵子冷冻决策辅助工具的随机对照试验。
Hum Reprod. 2024 Aug 1;39(8):1724-1734. doi: 10.1093/humrep/deae121.
5
Women Who Perform Social Egg Freezing as Moral Pioneers: The Case of Ultra-Orthodox Communities in Israel.作为道德先驱的进行社会冻卵的女性:以以色列极端正统派社区为例。
J Relig Health. 2024 Aug;63(4):2581-2598. doi: 10.1007/s10943-024-02062-z. Epub 2024 May 23.
6
Too much equity - is there such a thing? The public discourse surrounding elective egg freezing subsidy in Israel.过多的股权——有这样的事情吗?围绕以色列选择性卵子冷冻补贴的公共讨论。
Int J Equity Health. 2023 Feb 18;22(1):34. doi: 10.1186/s12939-023-01831-8.
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The emergence of temporality in attitudes towards cryo-fertility: a case study comparing German and Israeli social egg freezing users.态度中临时性的出现:对德国和以色列社会冷冻卵子使用者进行比较的案例研究。
Hist Philos Life Sci. 2022 May 17;44(2):19. doi: 10.1007/s40656-022-00495-x.

本文引用的文献

1
Between "Medical" and "Social" Egg Freezing : A Comparative Analysis of Regulatory Frameworks in Austria, Germany, Israel, and the Netherlands.在“医学”和“社会”层面的冻卵之间:奥地利、德国、以色列和荷兰监管框架的比较分析。
J Bioeth Inq. 2021 Dec;18(4):683-699. doi: 10.1007/s11673-021-10133-z. Epub 2021 Nov 16.
2
Financing future fertility: Women's views on funding egg freezing.为未来生育提供资金:女性对卵子冷冻资金的看法。
Reprod Biomed Soc Online. 2021 Aug 13;14:32-41. doi: 10.1016/j.rbms.2021.07.001. eCollection 2022 Mar.
3
Beyond individualisation: towards a more contextualised understanding of women's social egg freezing experiences.超越个体化:对女性社会卵子冷冻体验的更具情境化理解。
J Med Ethics. 2022 Jun;48(6):386-390. doi: 10.1136/medethics-2020-107190. Epub 2021 Apr 12.
4
Women's viewpoints on egg freezing in Austria: an online Q-methodology study.奥地利女性对卵子冷冻的看法:一项在线Q方法研究。
BMC Med Ethics. 2021 Jan 6;22(1):4. doi: 10.1186/s12910-020-00571-6.
5
A major increase in oocyte cryopreservation cycles in the USA, Australia and New Zealand since 2010 is highlighted by younger women but a need for standardized data collection.自 2010 年以来,美国、澳大利亚和新西兰的卵母细胞冷冻保存周期显著增加,主要是年轻女性推动的,但需要标准化的数据收集。
Hum Reprod. 2021 Feb 18;36(3):624-635. doi: 10.1093/humrep/deaa320.
6
Arguments on thin ice: on non-medical egg freezing and individualisation arguments.如履薄冰的争论:关于非医学目的的卵子冷冻及个体化论据
J Med Ethics. 2020 May 14. doi: 10.1136/medethics-2020-106059.
7
Interdisciplinary Collaborative Auditing as a Method to Facilitate Teamwork/Teams in Empirical Ethics Projects.跨学科协作审计作为促进实证伦理项目中的团队合作的一种方法。
AJOB Empir Bioeth. 2020 Jan-Mar;11(1):14-16. doi: 10.1080/23294515.2019.1705431.
8
About time: how time influences and facilitates patient autonomy in the clinical encounter.适时而为:时间如何在临床诊疗中影响并促进患者自主性
Monash Bioeth Rev. 2018 Dec;36(1-4):68-85. doi: 10.1007/s40592-018-0089-7.
9
Planned oocyte cryopreservation for women seeking to preserve future reproductive potential: an Ethics Committee opinion.拟对有生育潜能保存需求的女性进行卵母细胞冷冻保存:伦理学委员会意见。
Fertil Steril. 2018 Nov;110(6):1022-1028. doi: 10.1016/j.fertnstert.2018.08.027.
10
Ten pathways to elective egg freezing: a binational analysis.十种选择冻卵的途径:一项跨国分析。
J Assist Reprod Genet. 2018 Nov;35(11):2003-2011. doi: 10.1007/s10815-018-1277-3. Epub 2018 Aug 3.