Dogruoz Karatekin Bilinc, Icagasioglu Afitap
Istanbul Goztepe Prof. Dr. Suleyman Yalcin City Hospital, Clinic of Physical Medicine and Rehabilitation, Istanbul, Turkey.
Istanbul Medeniyet University Faculty of Medicine, Department of Physical Medicine and Rehabilitation, Istanbul, Turkey.
Medeni Med J. 2022 Mar 18;37(1):105-112. doi: 10.4274/MMJ.galenos.2022.54920.
This study aimed to investigate the current status and changes in motor and functional status, participation, and quality of life of individuals with cerebral palsy (CP) during the 13-year follow-up.
Data from the database were retrospectively analyzed, including comorbidities, mobility status, orthotic usage, and information about the rehabilitation program and follow-up. The EuroQol 5-Dimension 3-Level (EQ-5D-3L) was used to measure the health-related quality of life.
Of our participants, 38.4% could independently walk 13-years ago, which increased to 51.2% presently. The orthotic usage decreased from 48.7% to 25.6%, and the rate of continuing rehabilitation decreased from 100% to 58.9%. The mean EQ-5D-3L score was 0.36±0.42, and the mean EQ-visual analog scale score was 68±24.01.
Individuals with CP and their caregivers should be aware that CP is a lifelong disease and their continuity in rehabilitation programs should be encouraged. Independence in daily life activities should be aimed and participation in social life should be ensured.
本研究旨在调查脑性瘫痪（CP）患者在13年随访期间运动和功能状态、参与度及生活质量的现状和变化。
对数据库中的数据进行回顾性分析，包括合并症、活动状态、矫形器使用情况以及康复计划和随访信息。采用欧洲五维健康量表3级（EQ-5D-3L）来测量与健康相关的生活质量。
在我们的参与者中，13年前38.4%的人能够独立行走，目前这一比例增至51.2%。矫形器使用率从48.7%降至25.6%，持续接受康复治疗的比例从100%降至58.9%。EQ-5D-3L平均得分为0.36±0.42，EQ视觉模拟量表平均得分为68±24.01。
CP患者及其护理人员应意识到CP是一种终身疾病，应鼓励他们持续参与康复计划。应致力于实现日常生活活动的独立性，并确保患者参与社会生活。
