İçağasıoğlu Afitap, Doğruoz Karatekin Bilinç, Mesci Erkan, Yumusakhuylu Yasemin, Murat Sadiye, Yasin Şeyhmus
Department of Physical Medicine and Rehabilitation, Istanbul Medeniyet University Faculty of Medicine, Istanbul, Turkey.
Department of Physical Medicine and Rehabilitation, Istanbul Medeniyet University Goztepe Training and Research Hospital, Istanbul, Turkey.
Turk J Phys Med Rehabil. 2020 Nov 9;66(4):429-435. doi: 10.5606/tftrd.2020.5614. eCollection 2020 Dec.
The aim of this study was to evaluate health problems, accommodation, and mobility of adult patients with cerebral palsy (CP).
Between September 2018 and September 2019, a total of 70 adult CP patients (37 males, 33 females; mean age 29.4±10.2 years; range, 19 to 68 years) who were admitted to our clinic were included. Accommodation, education status, mental state, comorbidities, spasticity, contracture, deformity, and mobility of the patients were evaluated.
Of the patients, 24.3% were diplegic, 21.4% were hemiplegic, 32.9% were tetraplegic, 15.7% were dyskinetic, and 5.7% had mixed form of CP. Among the patient, 38.6% had normal mental ability and 21.4% had severe mental retardation. A total of 92.9% of the patients were living with their family, 85.7% were unemployed, 10% were illiterate, and 21.4% had no health problems. Speech disorder was the most common health issue in 52.9% of the patients. Other health concerns included sensory problems, epilepsy, bladder/intestinal problems, nutritional problems, and respiratory and skin problems. The ratio of pain was 31.4%. Mild deformity was present in 54.3% of the patients, 43.7% were wheelchair-dependent, and 25.7% were Gross Motor Function Classification System (GMFCS) Level V.
Recognition and understanding health problems and living conditions of adult patients with CP would be useful both in determining the treatment goals of pediatric CP patients and in improving the quality of life of adult CP patients.
本研究旨在评估成年脑瘫（CP）患者的健康问题、居住情况和行动能力。
2018年9月至2019年9月期间，纳入了共70例入住我院门诊的成年CP患者（男性37例，女性33例；平均年龄29.4±10.2岁；年龄范围19至68岁）。对患者的居住情况、教育状况、精神状态、合并症、痉挛、挛缩、畸形和行动能力进行了评估。
在患者中，24.3%为双瘫型，21.4%为偏瘫型，32.9%为四肢瘫型，15.7%为运动障碍型，5.7%为混合型CP。在患者中，38.6%智力正常，21.4%有严重智力障碍。共有92.9%的患者与家人同住，85.7%失业，10%文盲，21.4%没有健康问题。言语障碍是52.9%患者中最常见的健康问题。其他健康问题包括感觉问题、癫痫、膀胱/肠道问题、营养问题以及呼吸和皮肤问题。疼痛发生率为31.4%。54.3%的患者存在轻度畸形，43.7%依赖轮椅，25.7%为粗大运动功能分级系统（GMFCS）V级。
认识和了解成年CP患者的健康问题和生活状况，对于确定小儿CP患者的治疗目标以及改善成年CP患者的生活质量均有帮助。
