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多发性硬化症:低残疾与高残疾患者的控制点与生活质量之间的关系

Multiple sclerosis: relationship between locus of control and quality of life in persons with low versus high disability.

作者信息

Bijoux Leist Judith, Leist Thomas P

机构信息

Department of Counseling Psychology, West Chester University, West Chester, PA, USA.

Comprehensive MS Center, Thomas Jefferson University, Philadelphia, PA, USA.

出版信息

Health Psychol Behav Med. 2022 Mar 17;10(1):316-334. doi: 10.1080/21642850.2022.2050373. eCollection 2022.

Abstract

Health Locus of Control (HLOC) is the degree to which individuals believe that their health outcomes are controlled by 'external' factors - environmental forces, chance, fate, other people, or some higher power - or by 'internal' factors - their own behavior or action. Most of the literature on HLOC associates an Internal Health Locus of Control (IHLOC) to pro-health behaviors and better health outcomes. However, a few studies also suggest that in chronic illnesses, an External Health Locus of Control (EHLOC) could be beneficial with respect to pro-health behaviors and perceptions of Quality of Life (QoL), challenging assumptions about what leads to the most effective psychological coping in the face of difficult circumstances. Multiple sclerosis (MS) is a chronic immune condition of the central nervous system and the most frequent cause of non-traumatic disability in young adults, often despite treatment. The primary goal of this non-experimental, cross-sectional, quantitative study of 89 individuals with MS was to explore the HLOC of individuals with MS, and to identify whether holding an EHLOC positively impacts the MS patients' perceived QoL while taking into consideration their level of disability. This research found that individuals with higher disability scores tended to hold more EHLOC beliefs, and that there was a significant correlation between QoL and holding EHLOC beliefs. This study was able to capture the importance of control beliefs in the QoL of individuals with MS with higher disability. The clinical implications of the findingare explored and areas for further research are suggested.

摘要

健康控制点(HLOC)是指个体认为其健康结果受“外部”因素——环境力量、机遇、命运、他人或某种更高力量——或“内部”因素——自身行为或行动——控制的程度。关于健康控制点的大多数文献都将内部控制点(IHLOC)与促进健康的行为和更好的健康结果联系起来。然而,一些研究也表明,在慢性病中,外部控制点(EHLOC)在促进健康的行为和生活质量(QoL)认知方面可能是有益的,这对面对困难情况时何种因素能导致最有效的心理应对的假设提出了挑战。多发性硬化症(MS)是一种中枢神经系统的慢性免疫疾病,是年轻人非创伤性残疾的最常见原因,通常即便接受治疗也会出现这种情况。这项对89名多发性硬化症患者进行的非实验性、横断面定量研究的主要目的是探究多发性硬化症患者的健康控制点,并确定持有外部控制点是否在考虑其残疾程度的情况下对多发性硬化症患者感知到的生活质量产生积极影响。这项研究发现,残疾得分较高的个体往往持有更多的外部控制点信念,并且生活质量与持有外部控制点信念之间存在显著相关性。这项研究能够揭示控制信念在残疾程度较高的多发性硬化症患者生活质量中的重要性。本文探讨了这一发现的临床意义,并提出了进一步研究的方向。

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