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调查针对重度智力残疾和多重残疾儿童家长的沟通课程的认知情况。

Examining perceptions of a communication course for parents of children with profound intellectual and multiple disabilities.

作者信息

Rensfeldt Flink Anna, Åsberg Johnels Jakob, Broberg Malin, Thunberg Gunilla

机构信息

Habilitation and Health, Gothenburg, Sweden.

Speech and Language Pathology Unit, Institute of Neuroscience and Physiology, University of Gothenburg, Gothenburg, Sweden.

出版信息

Int J Dev Disabil. 2020 Feb 7;68(2):156-167. doi: 10.1080/20473869.2020.1721160. eCollection 2022.

Abstract

The overall aim was to examine participants' perceptions of a communication course as held for parents of children with profound intellectual and multiple disabilities. The course curriculum included responsive strategies and augmentative and alternative communication. The research questions addressed the favourability, changes in parents' or children's communication and appreciated or unappreciated course features. Twenty-two written course evaluations were analysed. The mean scores for ratings were compared with ratings in a previous study, including those of parents of children with generally milder disabilities. Comments and answers to open-ended questions were analysed using thematic analysis. Participants were slightly more satisfied with the course as compared with parents who had children with milder disabilities. The thematic analysis suggested increased parental responsiveness after the course. Perceptions of augmentative and alternative communication varied. It was unclear whether the course altered the children's communication or not. The supportive social milieu offered by the course was highly appreciated. Although generalisation beyond this course and setting is to be determined, the results suggest that parents of children with profound intellectual and multiple disabilities can appreciate a communication course and find it useful. An individual approach within the group setting and practical learning opportunities seem important.

摘要

总体目标是考察参与者对为重度智力残疾和多重残疾儿童的家长举办的沟通课程的看法。课程内容包括回应策略以及辅助和替代沟通。研究问题涉及课程的受欢迎程度、家长或孩子沟通方面的变化以及课程中受赞赏或不受赞赏的特点。对22份书面课程评价进行了分析。将评分的平均分与之前一项研究中的评分进行了比较,之前的研究包括有一般程度较轻残疾孩子的家长的评分。使用主题分析法对开放式问题的评论和回答进行了分析。与有轻度残疾孩子的家长相比,参与者对该课程的满意度略高。主题分析表明课程结束后家长的反应能力有所提高。对辅助和替代沟通的看法各不相同。尚不清楚该课程是否改变了孩子的沟通情况。该课程提供的支持性社会环境受到高度赞赏。尽管超出本课程和背景的推广情况有待确定,但结果表明,重度智力残疾和多重残疾儿童的家长能够认可一门沟通课程并发现其有用之处。小组环境中的个性化方法和实践学习机会似乎很重要。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/db89/8928796/5f6e8f5a55d5/YJDD_A_1721160_F0001_C.jpg

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