Thulien Madison, Anderson Haleigh, Douglas Shane, Dykeman Rainbow, Horne Amanda, Howard Ben, Sedgemore Kali, Charlesworth Reith, Fast Danya
British Columbia Centre on Substance Use, 1045 Howe St Suite 400, Vancouver, BC, V6Z 2A9, Canada.
Youth Health Advisory Council, Vancouver, Canada.
Harm Reduct J. 2022 Mar 25;19(1):30. doi: 10.1186/s12954-022-00615-7.
Community-based participatory research (CBPR) is increasingly standard practice for critical qualitative health research with young people who use(d) drugs in Vancouver, Canada. One aim of CBPR in this context is to redress the essentialization, erasure, and exploitation of people who use(d) drugs in health research. In this paper, we reflect on a partnership that began in 2018 between three university researchers and roughly ten young people (ages 17-28) who have current or past experience with drug use and homelessness in Greater Vancouver. We focus on moments when our guiding principles of shared leadership, safety, and inclusion became fraught in practice, forcing us in some cases to re-imagine these principles, and in others to accept that certain ethical dilemmas in research can never be fully resolved. We argue that this messiness can be traced to the complex and diverse positionalities of each person on our team, including young people. As such, creating space for mess was ethically necessary and empirically valuable for our CBPR project.
基于社区的参与式研究(CBPR)在加拿大温哥华针对曾使用过毒品的年轻人开展的重要定性健康研究中日益成为标准做法。在此背景下,CBPR的一个目标是纠正健康研究中对曾使用过毒品的人的本质化、忽视和剥削。在本文中,我们反思了2018年开始的一段合作关系,合作方是三位大学研究人员以及大约十位在大温哥华地区有过吸毒和无家可归经历的年轻人(年龄在17至28岁之间)。我们关注的是,我们的共同领导、安全和包容等指导原则在实践中变得棘手的时刻,这在某些情况下迫使我们重新构想这些原则,而在另一些情况下则迫使我们接受研究中的某些伦理困境永远无法完全解决。我们认为,这种混乱可以追溯到我们团队中每个人(包括年轻人)复杂多样的立场。因此,为混乱创造空间在伦理上对我们的CBPR项目是必要的,在经验上也是有价值的。