Yusuf Ayan A, Hatfield Victoria, Pridham Katherine Francombe, Da Silva George, Adams Rene, Mergarten Daniela, Snooks Veronica, Crichlow Frank, Hwang Stephen W
MAP Centre for Urban Health Solutions, St. Michael's Hospital, 209 Victoria St, Toronto, ON, M5B 1 T8, Canada.
Realize Canada, Toronto, ON, Canada.
Res Involv Engagem. 2025 May 15;11(1):50. doi: 10.1186/s40900-025-00733-z.
The involvement of communities with a stake in healthcare research is often limited, and attempts to increase their participation and to create shared decision-making partnerships are often hindered by structural barriers. In this paper, we describe the design and implementation of a Community Expert Group comprised of people with lived expertise of homelessness at an academic health research center. We detail the group's model, guiding principles, governance structure, and activities, and discuss institutional challenges encountered over the course of this partnership. We report that the lack of policies and practices in academic research institutions to support long-term collaboration with community experts makes it challenging to define their scope and role, often requiring individual research teams to fill this gap.
在医疗保健研究中，利益相关社区的参与往往有限，而增加其参与度并建立共同决策伙伴关系的尝试常常受到结构性障碍的阻碍。在本文中，我们描述了一个社区专家组的设计与实施情况，该专家组由学术健康研究中心具有无家可归生活经历的人员组成。我们详细介绍了该小组的模式、指导原则、治理结构和活动，并讨论了在这一伙伴关系过程中遇到的机构性挑战。我们报告称，学术研究机构缺乏支持与社区专家长期合作的政策和做法，这使得界定他们的范围和角色具有挑战性，往往需要个别研究团队来填补这一空白。
