Perenc Lidia, Perenc Adam, Bartosik-Psujek Halina
Institute of Health Sciences, College of Medicine, University of Rzeszow, Rzeszow, Poland.
Neurology Clinic with Stroke Sub-Unit, St. Hedvig Clinical Provincial Hospital, Rzeszow, Poland.
J Res Med Sci. 2022 Jan 29;27:2. doi: 10.4103/jrms.JRMS_170_20. eCollection 2022.
The main aim of the study was to identify selected factors that determine patients with multiple sclerosis (MS') failure to take home therapeutic exercises (HTE) and other physical activity (OPA).
The study was conducted using a self-completed online survey that was aimed at adult people diagnosed with MS, registered on the portal TacyJakJa.pl. In total, 335 persons were involved.
Almost half of all people who completed the survey (49.9%), reported that no one encouraged them to use HTE, and only 16.1% were encouraged by their doctor. As many as 51% of the respondents reported also that no one encouraged them to undertake OPA, and only 18.5% were encouraged by their doctor. As the most important reason for not using HTE, the respondents chose fear that exercises may worsen their condition (47.3%). However, the most important reason for not using the OPA was high fatigue (61.9%). The number of people exercising at home increased with age ( = 0.013). Those surveyed with relapsing-remitting MS significantly more often ( = 0.002) took up OPA (60.7%) than the respondents with a secondary progressive MS (10.0%) and a primary progressive (4.4%).
Physicians relatively rarely encourage patients with MS to undertake HTE and OPA. The patients do not perform HTE primarily because of fears of health deterioration or fatigue. Undertaking HTE is influenced by age but undertaking other forms of physical activity by the type of MS. Actions should be taken to popularize HTE and OPA, especially HTE among young patients.
本研究的主要目的是确定某些因素,这些因素决定了多发性硬化症(MS)患者未能进行家庭治疗性锻炼(HTE)和其他体育活动(OPA)。
本研究采用自行填写的在线调查问卷,对象是在TacyJakJa.pl门户网站上注册的成年MS患者。共有335人参与。
几乎一半完成调查的人(49.9%)表示没有人鼓励他们进行HTE,只有16.1%的人受到医生的鼓励。多达51%的受访者还表示没有人鼓励他们进行OPA,只有18.5%的人受到医生的鼓励。作为不进行HTE的最重要原因,受访者选择了担心锻炼可能会使病情恶化(47.3%)。然而,不进行OPA的最重要原因是疲劳程度高(61.9%)。在家锻炼的人数随年龄增加而增加(P = 0.013)。复发缓解型MS患者进行OPA的比例(60.7%)显著高于继发进展型MS患者(10.0%)和原发进展型患者(4.4%)(P = 0.002)。
医生相对较少鼓励MS患者进行HTE和OPA。患者不进行HTE主要是因为担心健康恶化或疲劳。进行HTE受年龄影响,而进行其他形式的体育活动受MS类型影响。应采取行动推广HTE和OPA,尤其是在年轻患者中推广HTE。