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澳大利亚自闭症患儿家长拥有一条自闭症援助犬的经历。

Australian parents' experiences of owning an autism assistance dog.

机构信息

Allied Health and Human Performance, University of South Australia, Adelaide, South Australia, Australia.

出版信息

Health Soc Care Community. 2022 Nov;30(6):e4113-e4121. doi: 10.1111/hsc.13805. Epub 2022 Mar 29.

Abstract

Autism assistance dogs (AADs) increase safety for children with autism and their families. Autism assistance dogs can also decrease familial stress and the isolation which families may experience due to fear for their child's safety and judgement from others within the community. Currently there is a paucity of literature on parents' experiences of AADs. Therefore, this study aimed to develop a rich understanding of parents' experiences of owning an AAD. A mixed methods design was utilised, with a qualitative descriptive design and the use of occupational mapping. Eight families were recruited through an Australian AAD programme and participated in semi-structured in-depth interviews throughout 2017. The interviews were analysed thematically. Mobility in the community before and after introduction of the dog was measured using occupational mapping. Families plotted on Google Map printouts the places they frequented before and after placement of their dog. Five major themes emerged from the analysis of the interviews: freedom through restraint; expanding our world; a calming/sensory tool (AAD); "at the end of the day they're dogs"; and, friendship and personal growth. The occupational maps demonstrated a median increase of 8.5 more places and 20.50 km further travelled from home after having the dog for over a year. Families with an AAD experienced an expanded world for the child and their family. Families experienced freedom in the places they could go, decreased isolation due to the safety which the dog provides. Occupational mapping supported the qualitative data, showing increased mobility and decreased isolation of the family. The paradox of freedom through restraint is a new and key finding which requires further exploration. The results provide support for funding and increased awareness of AAD programmes. Future longitudinal comparative studies are needed to explore the long-term impact of AADs on the child and family.

摘要

自闭症辅助犬(AAD)提高了自闭症儿童及其家庭的安全性。自闭症辅助犬还可以减少家庭的压力和孤立感,因为他们担心孩子的安全,并且担心社区中的其他人会对他们进行评判。目前,关于父母对 AAD 的体验的文献很少。因此,本研究旨在深入了解父母拥有 AAD 的体验。采用混合方法设计,包括定性描述设计和职业映射的使用。通过澳大利亚的 AAD 计划招募了 8 个家庭,并在 2017 年期间对其进行了半结构化深入访谈。访谈采用主题分析进行分析。使用职业映射来衡量引入狗前后社区中的移动性。家庭在 Google 地图打印件上绘制了他们在放置狗之前和之后经常光顾的地方。从访谈的分析中得出了五个主要主题:通过约束获得自由;扩大我们的世界;平静/感官工具(AAD);“归根结底,它们是狗”;以及友谊和个人成长。职业地图显示,在拥有狗一年多后,家庭前往的地方增加了 8.5 个,离家旅行的距离增加了 20.50 公里。拥有 AAD 的家庭为孩子和他们的家庭扩大了世界。家庭在可以去的地方获得了自由,由于狗提供的安全性,家庭的孤立感减少了。职业映射支持定性数据,显示家庭的流动性增加,孤立感减少。通过约束获得自由的悖论是一个新的关键发现,需要进一步探索。研究结果为资助和提高对 AAD 计划的认识提供了支持。需要进行未来的纵向比较研究,以探讨 AAD 对儿童和家庭的长期影响。

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