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自闭症谱系障碍个体的家庭福祉:范围综述。

Family wellbeing of individuals with autism spectrum disorder: A scoping review.

机构信息

York University, Canada

York University, Canada.

出版信息

Autism. 2016 Apr;20(3):262-75. doi: 10.1177/1362361315580442. Epub 2015 May 6.

Abstract

Families play an important role in supporting individuals with autism spectrum disorder across the lifespan. Indicators of family wellbeing can help to establish benchmarks for service provision and evaluation; however, a critical first step is a clear understanding of the construct in question. The purpose of the current scoping review was to (a) summarize current conceptualizations and measurements of family wellbeing, (b) synthesize key findings, and (c) highlight gaps and limitations in the extant literature. A final review of 86 articles highlighted the difficulty of synthesizing findings of family wellbeing in the autism spectrum disorder literature due to varied measurement techniques and the limited use of a common theoretical direction. Considerations for future research are presented with an eye toward policy relevance.

摘要

家庭在支持自闭症谱系障碍患者的整个生命周期中发挥着重要作用。家庭幸福感的指标有助于为服务提供和评估建立基准;然而,至关重要的第一步是清楚地了解相关的概念。本范围综述的目的是:(a) 总结家庭幸福感的当前概念化和测量方法,(b) 综合关键发现,以及 (c) 突出现有文献中的差距和局限性。对 86 篇文章的最终综述强调了由于测量技术的多样性和共同理论方向的使用有限,难以综合自闭症谱系障碍文献中的家庭幸福感发现。考虑到政策相关性,提出了未来研究的注意事项。

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