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基于网络的头颈部癌症患者综合教育和支持需求计划:可用性测试。

A web-based comprehensive head and neck cancer patient education and support needs program: Usability testing.

机构信息

Central Clinical School, 4334University of Sydney, Sydney, NSW, Australia.

Psycho-Oncology Cooperative Research Group (POCOG), School of Psychology, 4334The University of Sydney, Camperdown, NSW, Australia.

出版信息

Health Informatics J. 2022 Jan-Mar;0(0):14604582221087128. doi: 10.1177/14604582221087128.

Abstract

With increasing accessibility of the World Wide Web, patients are using it to obtain patient education materials (PEM). With this in mind, our group (surgeons, radiation oncologists, medical oncologists, nursing, allied health professionals and academic researchers) developed a comprehensive information resource for patients with head and neck cancer (HNC), the Head and Neck Cancer Australia, formerly Beyond Five website. The aim of this study was to determine patient usability of the Head and Neck Cancer Australia website. Usability testing (Cognitive walkthrough & Think-Aloud) in 18 patients treated for HNC was undertaken at a Cancer centre (anonymous for reviewers). The tasks rated easiest by patients were finding information on psychological well-being (mean time spent: 66 s, range: 10-565), health and well-being effecting quality of life (mean time spent: 36 s, range 9-117) and carer information (mean time spent: 10 s, range 3-35). Patients indicated the website contained a lot of information, covers most topics, was a trusted source of information and a springboard to other information. The Head and Neck Cancer Australia website provides a wide range of information and support in multiple formats available to HNC patients. Further refinements in design, navigation and website instructions are needed to allow effective patient interaction.

摘要

随着万维网的普及,越来越多的患者开始利用它获取患者教育材料(PEM)。有鉴于此,我们的团队(外科医生、放射肿瘤学家、肿瘤内科医生、护士、辅助卫生专业人员和学术研究人员)为头颈部癌症(HNC)患者开发了一个综合性的信息资源,即澳大利亚头颈部癌症网站,前身为 Beyond Five 网站。本研究旨在确定头颈部癌症澳大利亚网站的患者可用性。在一家癌症中心(为评审人员匿名)对 18 名接受 HNC 治疗的患者进行了可用性测试(认知走查和出声思维)。患者评价最简单的任务是查找有关心理健康(平均用时:66 秒,范围:10-565)、健康和幸福感对生活质量的影响(平均用时:36 秒,范围 9-117)和护理人员信息(平均用时:10 秒,范围 3-35)的信息。患者表示该网站包含大量信息,涵盖了大多数主题,是值得信赖的信息来源,也是获取其他信息的跳板。澳大利亚头颈部癌症网站为 HNC 患者提供了多种格式的广泛信息和支持。需要进一步改进设计、导航和网站说明,以实现有效的患者交互。

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