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一个网站汇集所有信息:新德国皮肤癌信息(SKINFO)网站的可用性测试——一种混合方法。

One Website to Gather them All: Usability Testing of the New German SKin Cancer INFOrmation (SKINFO) Website-A Mixed-methods Approach.

机构信息

Department of Dermatology, University Hospital Erlangen, Friedrich-Alexander University Erlangen-Nürnberg, Ulmenweg 18, 91054, Erlangen, Germany.

Comprehensive Cancer Center Erlangen - European Metropolitan Region of Nürnberg, 91054, Erlangen, Germany.

出版信息

J Cancer Educ. 2023 Aug;38(4):1264-1270. doi: 10.1007/s13187-022-02258-5. Epub 2022 Dec 30.

Abstract

Skin cancer patients increasingly search the internet to acquire disease-related information. However, information on the internet may be misleading. Recently, SKINFO has been launched, a website exclusively created for German-speaking skin cancer patients providing information as well as additional resources of verified quality. Here, we describe the results of the first usability test of SKINFO using a mixed-methods approach. Ten adult patients with skin cancer were recruited for usability testing in the skin cancer units of the University Hospitals of Erlangen and Dresden, Germany. Testing consisted of three different scenarios where patients were asked to find specific information on the SKINFO website guided by the think-aloud method. Descriptive analysis and content analyses were performed. All patients would recommend SKINFO and appreciated its content, design, and structure. Think-aloud analysis identified the topics layout, navigation, and content and structure which would benefit from refinement. Major criticism included the navigation through the website, and the desire for more specific information addressing patients' relatives and the latest, up-to-date information. Overall, usability testing showed that the unique web-based information platform has the potential to support patients coping with skin cancer and thus strengthen informed decision-making.

摘要

皮肤癌患者越来越多地在互联网上搜索与疾病相关的信息。然而,互联网上的信息可能具有误导性。最近,专门为德语皮肤癌患者创建的网站 SKINFO 已经推出,该网站提供信息以及经过验证的高质量额外资源。在这里,我们使用混合方法描述了对 SKINFO 的首次可用性测试的结果。在德国埃尔兰根和德累斯顿大学医院的皮肤癌科招募了 10 名成年皮肤癌患者进行可用性测试。测试包括三个不同的场景,患者在这些场景中被要求在 SKINFO 网站上根据出声思维方法找到特定信息。进行了描述性分析和内容分析。所有患者都推荐 SKINFO,并赞赏其内容、设计和结构。出声思维分析确定了需要改进的主题布局、导航以及内容和结构。主要批评包括网站导航以及对患者亲属和最新、最新信息的更具体信息的需求。总体而言,可用性测试表明,这个独特的基于网络的信息平台有可能支持应对皮肤癌的患者,从而加强知情决策。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8c81/10366310/5707475874a0/13187_2022_2258_Fig1_HTML.jpg

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