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易损性的交集:儿童姑息治疗与儿童虐待的融合——叙述性综述,以及对沟通的关注。

A Venn diagram of vulnerability: The convergence of pediatric palliative care and child maltreatment a narrative review, and a focus on communication.

机构信息

Department of Pediatrics, Medical College of Wisconsin, Milwaukee, WI, USA.

Department of Pediatrics, Perelman School of Medicine, University of Pennsylvania, The Children's Hospital of Philadelphia, Philadelphia, PA, USA.

出版信息

Child Abuse Negl. 2022 Jun;128:105605. doi: 10.1016/j.chiabu.2022.105605. Epub 2022 Mar 31.

Abstract

Child maltreatment and end-of-life care independently represent two of the most emotion-laden and uncomfortable aspects of pediatric patient care. Their overlap can be uniquely distressing. This review explores ethical and legal principles in such cases and provides practical advice for clinicians. The review focuses on three archetypal scenarios of overlap: life-limiting illness in a child for whom parental rights have been terminated; life-threatening injury under CPS investigation; and complex end-of-life care which may warrant CPS involvement. While each scenario presents unique challenges, one consistent theme is the centrality of effective communication. This includes empathic communication with families and thoughtful communication with providers and community stakeholders. In almost all cases, everyone genuinely wants to do what is in the best interest of the child in these unthinkable circumstances. Transparent and collaborative communication can ensure that broad perspectives are considered to ensure that each child gets the best possible care in a manner adherent with ethical and legal standards, as they apply to each case.

摘要

儿童虐待和临终关怀分别代表了儿科患者护理中最情绪化和最不适的两个方面。它们的重叠可能会特别令人痛苦。本综述探讨了此类情况下的伦理和法律原则,并为临床医生提供了实用建议。该综述侧重于重叠的三个典型场景:父母权利已被终止的患有绝症的儿童;在儿童保护服务调查下的危及生命的伤害;以及可能需要儿童保护服务介入的复杂临终关怀。虽然每种情况都提出了独特的挑战,但一个一致的主题是有效沟通的核心地位。这包括与家庭进行共情沟通,以及与提供者和社区利益相关者进行深思熟虑的沟通。在几乎所有情况下,每个人都真诚地希望在这些不可思议的情况下为孩子做最符合其利益的事情。透明和协作的沟通可以确保考虑广泛的观点,以确保每个孩子都能以符合伦理和法律标准的方式获得尽可能好的护理,这些标准适用于每个案例。

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本文引用的文献

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Children's unmet palliative care needs: a scoping review of parents' perspectives.儿童未满足的姑息治疗需求:父母观点的范围综述。
BMJ Support Palliat Care. 2019 Dec;9(4):439-450. doi: 10.1136/bmjspcare-2018-001705. Epub 2019 Jul 19.
8
Shared Decision-making in Pediatric Practice: A Broad View.儿科实践中的共享决策:广阔视角。
Pediatrics. 2018 Nov;142(Suppl 3):S129-S132. doi: 10.1542/peds.2018-0516B.
10
Modes of Death Within a Children's Hospital.儿童医院内的死亡模式。
Pediatrics. 2018 Oct;142(4). doi: 10.1542/peds.2017-4182.

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