Beer Kelly, Gentgall Melanie, Templeton Nicola, Whitehouse Claire, Straiton Nicola
Clinical Research Manager, Perron Institute for Neurological and Translational Science; Murdoch University, Perth, WA, Australia.
Clinical Research Nurse, South Australian Health and Medical Research Institute (SAHMRI), Adelaide, SA, Australia.
J Res Nurs. 2022 Mar;27(1-2):143-154. doi: 10.1177/17449871221077076. Epub 2022 Apr 1.
There is a global call for more inclusive clinical research that is representative of all populations, particularly those historically under-represented or under-served. A lack of broad representation results in disproportionate health outcomes and limits the applicability and translation of research findings.
Identify and describe barriers to participation across the research lifecycle and consider the role of the Clinical Research Nurse (CRN) in promoting inclusivity, including for Aboriginal and Torres Strait Islander Peoples within Australia.
Review of recent literature and best practice identified barriers to research participation across the research process; at system, participant and practitioner levels. This discussion paper explores the role of the CRN; acting as enablers, facilitators and navigators, to mitigate participation barriers.
With their comprehensive understanding of the research process, clinical care pathways, reflective practices and participant-centred approaches, CRNs are uniquely positioned to advocate for greater equity in access to clinical research and to motivate stakeholders across the research enterprise to embed inclusive approaches in the design, conduct and dissemination of research.
An in-depth understanding of the research process, self, and cultural norms of the populations they serve is essential for CRNs to effectively advocate for equity in access to research.
全球都在呼吁开展更具包容性的临床研究，使其能代表所有人群，尤其是那些在历史上代表性不足或服务欠缺的人群。缺乏广泛代表性会导致健康结果不均衡，并限制研究结果的适用性和转化。
识别并描述整个研究周期中参与研究的障碍，并探讨临床研究护士（CRN）在促进包容性方面的作用，包括对澳大利亚原住民和托雷斯海峡岛民的作用。
对近期文献和最佳实践的回顾确定了在研究过程中，在系统、参与者和从业者层面上参与研究的障碍。本讨论文件探讨了CRN作为推动者、促进者和导航者，在减轻参与障碍方面的作用。
凭借对研究过程、临床护理路径、反思性实践和以参与者为中心的方法的全面理解，CRN在倡导临床研究获取方面实现更大公平性以及激励整个研究机构的利益相关者在研究设计、实施和传播中采用包容性方法方面具有独特的地位。
CRN要有效倡导研究获取方面的公平性，深入了解研究过程、自身以及所服务人群的文化规范至关重要。
