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非癌症疾病的门诊姑息治疗:一个项目在实施、影响和经验教训方面的经验。

Outpatient Palliative Care for Noncancer Illnesses: One Program's Experience with Implementation, Impact, and Lessons Learned.

机构信息

Division of Palliative Medicine, Department of Medicine, University of California, San Francisco, San Francisco, California, USA.

Department of Surgery, University of California, San Francisco, San Francisco, California, USA.

出版信息

J Palliat Med. 2022 Oct;25(10):1468-1475. doi: 10.1089/jpm.2022.0019. Epub 2022 Apr 18.

Abstract

Despite substantial palliative care (PC) needs in people with serious illnesses other than cancer, outpatient PC is less available to these populations. Describe the experience, impact, and lessons learned from implementing an outpatient PC service (OPCS) for people with noncancer illnesses. Observational cohort study. Patients seen by an OPCS at a United States academic medical center October 2, 2017-March 31, 2021. Patient demographics and clinical characteristics, care processes, rates of advance care planning (ACP), and health care utilization. During the study period, 736 patients were seen. Mean age was 66.7 years, 47.7% were women, and 61.4% were White. Nearly half (44.9%) had a neurologic diagnosis, 19.2% pulmonary, and 11.0% cardiovascular. Patients were most often referred for symptoms other than pain (62.2%), ACP (60.2%), and support for patient/family (48.2%). Three-quarters (74.1%) of visits occurred by video. A PC physician, nurse, social worker, and spiritual care provider addressed nonpain symptoms (for 79.2%), family caregiver needs (70.0%), psychosocial distress (69.9%), ACP (68.8%), care coordination (66.8%), pain (38.2%), and spiritual concerns (27.8%). Rates of advance directives increased from 24.6% to 31.8% ( < 0.001) and Physician Orders for Life-Sustaining Treatment forms from 15.6% to 27.3% ( < 0.001). Of 214 patients who died, 61.7% used hospice, with median hospice length-of-stay >30 days. Comparing the six months before initiating PC to the six months after, hospitalizations decreased by 31.3% ( = 0.001) and hospital days decreased by 29.8% ( = 0.02). Outpatient PC for people with noncancer illnesses is feasible, addresses needs in multiple domains, and is associated with increased rates of ACP and decreased health care utilization. Controlled studies are warranted.

摘要

尽管患有除癌症以外的严重疾病的人群有大量的姑息治疗(PC)需求,但这些人群获得的门诊 PC 服务却较少。本研究旨在描述为患有非癌症疾病的人群实施门诊 PC 服务(OPCS)的经验、影响和教训。这是一项观察性队列研究。患者于 2017 年 10 月 2 日至 2021 年 3 月 31 日在美国一家学术医疗中心的 OPCS 就诊。患者的人口统计学和临床特征、护理过程、预先医疗指示(ACP)的制定率以及医疗保健的使用情况。在研究期间,共 736 名患者就诊。患者的平均年龄为 66.7 岁,47.7%为女性,61.4%为白人。近一半(44.9%)的患者有神经学诊断,19.2%的患者有肺部疾病,11.0%的患者有心血管疾病。患者最常因疼痛以外的症状(62.2%)、ACP(60.2%)和患者/家属支持(48.2%)而被转介。75%的就诊是通过视频进行的。PC 医生、护士、社会工作者和精神关怀提供者解决了非疼痛症状(79.2%)、家庭照顾者需求(70.0%)、心理社会困扰(69.9%)、ACP(68.8%)、护理协调(66.8%)、疼痛(38.2%)和精神关注(27.8%)。预先医疗指示的制定率从 24.6%增加到 31.8%( < 0.001),医生生命维持治疗指令表的制定率从 15.6%增加到 27.3%( < 0.001)。在 214 名死亡患者中,61.7%的患者使用了临终关怀,中位临终关怀持续时间超过 30 天。与开始 PC 前的六个月相比,六个月后,住院率下降了 31.3%( = 0.001),住院天数下降了 29.8%( = 0.02)。为患有非癌症疾病的人群提供门诊 PC 是可行的,它可以解决多个领域的需求,并与更高的 ACP 制定率和更低的医疗保健利用率相关。需要进行对照研究。

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